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Newly diagnosed child

Sat, November 21, 2020 12:43 PM

My son is in the 6th grade and is newly diagnosed with Crohns. They did some scopes and said it looked consistent with crohns. He has had a fistula that flares up once in a while. Once in the first grade and the other in 5th grade.
During the scope they found ulcer ing tissue in his upper small intestine.

The doctors want to put him on inflectra for a long period of time. I feel like my kid is pretty healthy average weight and height. Should I ask to try corticosteroids/modulators/antibiotics first since he hasn't tried anything to moderate an ulcer he has had for 5 years.

Parentwithhope
Joined Nov 21, 2020

Mon, November 23, 2020 4:34 PM

Reply posted for administrator.

Dear Parentwithhope,

We are sorry to read about your son's new diagnosis. Please know that you are not alone and there is support and information available to help you learn about Crohn's Disease and make treatment decisions with your son's doctor.

To start it could help to read information about treatment options and decision making. The link to this information is

Treatment Approaches: Shared Decision Making https://www.crohnscolitisfoundation.org/shared-decision-making

Treatment Options for Pediatric Crohn's: A Guide for Patients and Families https://www.my-emmi.com/SelfReg/DECIDEIBD

A Guide for Parents and Pediatric Caregivers https://www.crohnscolitisfoundation.org/sites/default/files/2019-10/parents-guide-brochure-final-online.pdf

As you read through or view the videos be sure to write down questions to discuss with the healthcare team.

If you have questions or want to talk, contact the IBD Help Center at info@crohnscolitisfoundation.org or 888-694-8872 x 8.

administrator
Joined Oct 12, 2017

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