All the Newbies out there, I belong to a group and there are a ton of us that have IBD. I have had it since 2011. I to tried Pentasa and Endocort and for me it didn't really do anything. But there is something that works. There is no cure for IBD but it will bring you back to a point where you can function sometimes without meds and you can lead a full life. There might be flares randomly but that all depends of you and what you put in your mouth. It is called the SCD Diet. It is a way of life. The Specific Carbohydrate Diet actually works because the woman that helped create it was Elaine Gotschall. Her daughter has UC. The basis of the diet is NO dairy, grains, soy, bread, pasta, only certain carbs etc. The name of the book is Breaking the Vicious Cycle and it explains in detail what to do and not do. There is a intro diet and I will be honest you will lose weight in the beginning. I lost 20 pounds. . Your body is going to CRAVE the sugar. Let's face it the SAD (Standard American Diet) is full of sugar. Everything we eat that is in package read the back of the labels, things you can't even pronounce. But now the things you CAN EAT. Meats (Grass fed Beef) not grain fed, chicken, turkey, homemade yogurt (dairy) after the intro diet is done, fruits in moderation, veggies and some baked goods with Almond flour or coconut flour. Google SCD Lifestyle, and recipes and you will be on your way. Doctors and some people do not believe in this diet and they will say it doesn't work. You do cook ALOT. I cook every Sunday for the week for lunches and extra snacks, otherwise I couldn't do it everyday. After you have healed some try Digestive Wellness, pre-made food. Hope this helps. Each person has a choice. Do they want to have the symptoms and flares of IBD while being on the drugs also or be inconvenienced and cook ALOT and eat healthy.
Reply posted for kman484.
I completely agree with kman484's response.
I also find it odd how the tables have changed since I was on this forum a couple of years ago. Don't forget when you were a newbie yourself MJPPOLL
Reply posted for mjppoll.
I think it is irresponsible and borderline unethical for posters to come on this board peddling the SCD diet and the accompanying book as a panacea for inflammatory bowel disease. The diet has worked for some people, but it has not worked for others, including me. In fact, my condition grew worse while on the diet, and I adhered to it down to the last molecule. There is no scientific evidence that the diet works--just the anectodal reports of the diet's advocates. Moreover, the author of the diet, Elaine Gottschall, was completely wrong about the cause of celiac disease: she claimed it was caused by carbohydrate intake, when in fact it was later discovered that the cause was a protein, gluten. If you want to try this diet, fine--but proceed with caution, and be aware that there is no cure for IBD, including this diet. People who post messages here claiming the the diet will work wonders for everyone are doing a disservice to often-desperate people who need serious advice, not false promises with no scientific foundation.
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