Miserable this morning, and just want to cry....
Wed, August 06, 2008 12:00 AM
I just need to vent in a place where people understand what I'm going through.... I was up all hours of the night last night going to and from the bathroom. I was crampy, cranky, sleepy, and annoyed. It didn't help matters that I had a fight with my boyfriend - fighting usually affects my gut anyways, whether or not I'm suffering a flare-up. So between that and not sleeping last night, and still feeling crampy this morning, I'm just miserable. I'm sitting at my cubical at work, but all I want to do is curl up into a ball and cry myself to sleep.
Tomorrow I start Remicade. But I imagine it's not going to be a miracle drug that makes me feel better overnight. I don't know how much more of this misery I can take. I prayed so hard this morning for the strength to get through the day today. I'm just so tired of being sick. 
Joined Aug 4, 2008
Wed, August 06, 2008 3:09 PM
Reply posted for JNA.
Thank you both Mrcleanks and JNA for your replies. It's so comforting to know I am not alone and that others have been where I am. My day has gotten a little better, but not by much. I have an hour to go, and then as soon as I get home, I'll be taking a nap. And then tomorrow morning, I will be getting my first Remicade infusion. Normally I'd be nervous about a new drug, especially one so drastic. But I can't wait to get it started. Hearing other's success stories gives me a sense of hope.
Thanks again for your kind words and encouragements.
Joined Aug 4, 2008
Wed, August 06, 2008 3:02 PM
Reply posted for geminisunset.
Im so sorry that youre having a bad day... Ive been there and feel your pain! I remember sitting in my cubicle, staring at my computer, starving but in pain if I ate, tired beyond belief, unable to concentrate, and just waiting for it to be 5 oclock. If it makes you feel any better, you are not alone, and it WILL get better. Tomorrow is another day!
As far as the Remicade goes, I hope this helps brighten your day: When I first strated it, it worked like a charm within 48 hours or so. I was like a new person! I usually felt sluggish and sore the day after an infusion (always took Benadryl and Tylenol the next day), but by day two or three, I was bouncing off the walls and healthy as a horse. I never even really knew I was sick while on Remicade! Despite any reactions and complications that I had, it was totally, 100% worth it to be on it - it worked like a miracle drug.
Hope your day has gotten better... keep your chin up - there's hope for feeling better as long as theres a new drug to try!
Joined Jun 3, 2008
Wed, August 06, 2008 8:22 AM
Reply posted for geminisunset.
I definately understand being "sick and tired of being sick and tired"!! Hopefully the remicade will help you. After my first infusion I did feel better-I actually had some energy for a change. The nurse that does my infusions told me she has seen some patients have great results. (My case is unusual because when I started it was remicade or surgery because I had a pretty damaged section of intestine. It ended up being beyond healing, the damage was done, so I still had surgery.) I know someone on remicade for arthritis and they are doing well. I did feel "fluish"that first day and the next but once that was gone, I did notice a difference. I really hope it works for you! I know it's hard to not get discouraged but try to hang in there. :)
mrcleanksJoined Jul 8, 2008
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