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Just a question

Wed, November 11, 2020 8:47 AM

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When I had colitis I had perpetual diarhea. What I didn't realize was I was passing blood constantly.which made me severely anemic. When that got diagnosed I had five pints of blood transfused. Eventually I was getting three pints a month. get your blood levels checked.

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Fri, January 01, 2021 1:01 PM

Reply posted for Kieran Burton .

Hi Kieran,

It's a while since you posted, so I am hoping you have stopped passing blood now, but if you haven't I would say you need to speak to your doctor about it.

I am on Pentasa too. But after my intial diagnosis, when I was also passing blood, I was put on three different medications (steroids, azathioprine and pentasa). I believe the steroids and the azathioprine were the hardcore ones that sorted me out and made the bleeding stop, whilst the pentasa is the maintenance one to keep me going over the years without too many issues. So it may be you need a boost with a more powerful drug for a little bit as well as the pentasa, or possibly further investigation.

Hopefully you are sorted by now, but I saw nobody had responded to your post, so I thought I would in case you are still waiting for a reply.

Take care

CazzaCartwheels
Joined Jan 1, 2021

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