Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

meeting topics

Tue, November 18, 2008 1:00 AM

I am helping out at our monthly ccfa meetings and was wondering if anyone has any suggestions of great topics/discussions/speakers that would be good to try to set up for our meetings. I figured everyone here would have the best ideas. Thanks.

tfreedman
Joined Nov 12, 2008

Sun, December 14, 2008 5:49 PM

Reply posted for tfreedman.

At one of our meetings we had a Dr. in residency who had Crohns. We learned a lot about the origins of the disease as well as how a college student with Crohns was able to cope. At most of our meetings we don't deal with topics. We do a round table about how we all coped in the last month. What we found that worked for each of us and what didn't work out. This format also is very informative and unstuctured.

marilynaz
Joined Jun 4, 2008

Tue, December 09, 2008 1:00 AM

Reply posted for RJB10345.

Thank you for your help. These look like great ideas to go off of.

I am also thinking:

tai chi, pharmasist to talk about side effect, healthy eating

I love the idea of a comedian. It would be great if I could find someone to do it (we don't have a budget to pay anyone)

thanks again

tfreedman
Joined Nov 12, 2008

Sun, November 30, 2008 8:55 PM

Reply posted for Jdelgado81.

Dear jdelgado81, why don't you ask your gastr. if he/she knows of a local support group? Maybe check the local paper they might have a notice on it. Actually I found out about ours right here on this website I've been going now for over a year. Good Luck Postal-me

postal-me
Joined Mar 16, 2008

Sat, November 29, 2008 1:00 AM

Reply posted for tfreedman.

I would suggest the following program topics for your meeting schedule:

    1. Ask a medical professional from a nearby teaching hospital speak to the issue of new research being done on Crohn's. It can provide hope for some of your younger members that help is on the way.
    2. Invite someone who has had Crohn's for over 30 years to speak on their successful management of the disease. It would help others to understand that one can have a full life with this chronic ailment.
    3. Teach how to keep an accurate journal, as well as how to be assertive when speaking with one's physician.
    4. Bring in comic to lighten up one of your meetings. Too often we forget that it is okay to just laugh (amongst ourselves, of course) over some of the embarrassing things that can happen to those of us that have become "intimate" with bathrooms!

Good luck!

Bob

rjb10345
Joined Nov 23, 2008

Wed, November 26, 2008 8:07 PM

Reply posted for Jdelgado81.

I am in Fort Wayne, IN. I am just curious what most people would like to have discussion or certain topics about. I figure anyone here would be able to give me ideas.

tfreedman
Joined Nov 12, 2008

Thu, November 20, 2008 9:10 PM

Reply posted for tfreedman.

Where do u go for meetings. I was diagnosed with UC in march of this year now just found out I have crohns instead of UC. I had my surgery just this month first one and I hope last. Please any information would be great.

jdelgado81
Joined Aug 14, 2008

Related Topics

Barrier And Pouch misorde...

Mich0501
Joined Jan 15, 2025

I have sensura mio deep convex pouch sets that I c....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.

Community Forum

meeting topics

Related Topics

Barrier And Pouch misorde...

Crohn's & Colitis Community Forum

Rules

Welcome to the Crohn's & Colitis Community!

You are leaving this site