Not sure what to do...
Wed, August 01, 2012 6:42 PM
i feel like i need to pour my heart out here. i'm a 32 year old guy, been diagnosed with crohn's for a little over a year. i had insurance when i first started getting treated, but circumstances changed and now i am at a different job that does not have insurance. when i left the other job, i was still in the process of getting treated and had never really been symptom-free (though mostly so on prednisone). when i end the prednisone course i went onto asacol (also tried another one, which i can't remember). now, due to lack of insurance, i'm on generic sulfasalazine for maintenance and have a very nice family doctor treating me. but, it doesn't seem to be working, i have been taking waaay too much time off work, and my work is starting to get frustrated at me. i have been open with them about my condition since day 1 and they have been very accommodating about bathroom breaks, etc. this being said, they warned me that if the absences continue i could be without a job.
i tried for disability once (denied, of course) but really would rather work. i just don't know what to do. the drugs i really need are way beyond my pay grade without insurance, as is a good gastroenterologist.
i just feel like everything is going to *** . don't know where to turn or what to do and just feel like giving up sometimes. so, i decided to turn to those who have been through it. what should i do?
jonizaakJoined Mar 9, 2011
Tue, August 07, 2012 9:40 AM
Reply posted for jonizaak.
The correct food/diet/lifestyle plan can reduce or eliminate your IBD issues.
I highly recommend SCD or GAPs diet. It is just eating the right foods, no insurance required and a GI is not really required either.
SCD - ww.breakingtheviciouscycle.info/
GAPS- ww.gapsdiet.com/
Both have Facebook groups that can offer a ton of support, recipes, tips, etc...
Joined Feb 8, 2009
Mon, August 06, 2012 9:49 AM
Reply posted for jonizaak.
It's unfortunate with the insurance situation, but you aren't the first person nor will you be the last that this has happened to.
What is your lifestyle/diet like? I know some don't believe diet has anything to do with IBD, but others (myself included) do. We worked with a nutritionist to become acclimated to a diet that was low in residue and fiber and it took some time to figure out which foods triggered my daughter. Also, what about exercise? Yoga, biking, swimming, staying active often helps too!
I agree with your previous response for dr. samples. Often times the pharm reps work hand in hand with docs to supply patients, perhaps if you speak w/your doc they can be a bit more giving due to your situation. Also, some of the prescription co offer programs for patients who can't pay.
Hopefully you can make some dietary/lifestyle changes to make a difference.
Good luck
Lizzies Mom
Joined Sep 9, 2009
Fri, August 03, 2012 8:59 PM
Reply posted for jonizaak.
You have no insurance and a preexisting condition. There is a provision in the health care law that may help you. You will need to apply for an individual policy, when you are denied insurance you can then apply for a policy under this law. You have to be without insurance for 6 months and have this denial to qualify. Here is the link to more information : http://www.healthcare.gov/law/features/choices/pre-existing-condition-insurance-plan/index.html . Hope this helps.
Since your doctor is a family practitioner he/she may not have samples of your meds. A gastroenterologist would have samples, my doctor has been very helpful in this area. Hopefully you will soon be able to see a specialist for your Crohn's. Good luck to you.
Joined Mar 24, 2012
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