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My daughter wants a friend like her

Wed, October 02, 2013 7:42 PM

I have a daughter who is now seven. She was diagnosed with Crohn's at age three . As her mom i have always tried to make her feel like she was no different from her peers. Here lately she has made statements of "feeling like the only one with Crohn's" , " I just want to have a friend who is like me " , or " why do I have to have Chrohn's " . I am clueless on how to help her. I hate this feeling !!! Is there any one with suggestions on how to cope with this? Thanks for any help.

leigh6399
Joined Oct 2, 2013

Sat, August 23, 2014 12:09 AM

Reply posted for leigh6399.

I have a son who is 10 and he feels the same way. He is a nice boy who likes little kids. He has been looking for someone to reach out to in a sort of way. He has a sister your daughters age. Plus I am feeling the same way you are. Maybe we can talk as moms.
I heard the camps are good too.
Thanks for saying what I did not.
Bethany

sunshinemom
Joined Jun 9, 2014

Wed, April 16, 2014 10:04 PM

Reply posted for leigh6399.

I could be a friend.

baller123
Joined Apr 16, 2014

Thu, November 07, 2013 12:45 PM

Leigh639,

Your daughter is not alone. Some of CCFA local chapters have support groups for kids that may be helpful. To find your local chapter log onto http://www.ccfa.org/chapters/. She can also read about "Pete's" experience about living with the disease in our comic book called "Pete Learns All About Crohn's and Colitis at http://www.ccfa.org/assets/pdfs/ccfa-online-comicbook.pdf

Also check out the IBD & Me Activity Book at: http://www.ccfa.org/assets/pdfs/activitybookweb.pdf

Contact the IRC for more info at info@ccfa.org

administrator
Joined Oct 12, 2017

Wed, November 06, 2013 2:26 AM

Reply posted for leigh6399.

I second the suggestion to look into sending her to camp oasis. Take care!!

altman282
Joined Feb 21, 2012

Thu, October 03, 2013 12:55 PM

Reply posted for leigh6399.

I know exactly what you are going through. My daughter was dx w/cd @4, she will be 14 in Jan. and we went through the same thing. We used to call it a "special belly". Our pedi gi's office started having support groups where kids and parents were invited. Though we stopped going because she was much younger than the other kids and the teens were starting to have a negative impact on her much younger spirit. I recommend you get involved. We started participating the the annual fund raiser. We've actually made a tradition of it....we raise money, participate in the walk and go out to dinner at a favorite pub near by. You may want to ask your gi if they could put you in contact with another family or the local CCFA Office. Also when she gets a little older, I think you have to be 10, you can send her to Camp Oasis. It is just for kids CD/UC; my daughter has met some of her closest friends there. Her ordinary school or cheer friends have no idea about her "special belly".

lizzies mom
Joined Sep 9, 2009

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