chrons?colitis?
Thu, October 10, 2013 1:10 PM
my name is mickey i was diagnosed with ulcerative colitis in 2008 although i had all syptoms sice age 10,, this year upon moving out of state my gi doc informed me that my condition may be chrons because of recent tests.. As it comes down to the point my condition is now chrons colitis,, a hybrid so to speak. I also have arthritis havent seen a bone doc or anything but my gi let me know yrs back thats what i have.. thats another topic. What i am wondering is if anyone else has the problem of being on the medications and your symptoms not changing and overall not feeling any better but your test results seem to be improving? if anyone has any feedback it would be appreciated. thankyou!
kaysthoughtsJoined Oct 10, 2013
Mon, October 14, 2013 2:30 AM
Reply posted for kaysthoughts.
Hi Mickey, I need to clear up some misinformation seeing as how I am new to this too. Crohn's colitis is Crohn's Disease that is found in the colon mostly. It can look scattered and not continuous in nature. It is not continuous in its inflammation like ulcerative colitis is. You can look up the definitions under what are crohns and colitis at the top of this page. It confused me too when my digestive doctor tried explaining it to me. So, if you would want to talk, my email is mary11732010@hotmail.com . Let me know how you are from time to time, if you feel comfortable enough and wish to communicate.. Take care of yourself Mickey, I hope we can be friends. Megan40
megan40Joined Sep 30, 2013
Sat, October 12, 2013 4:03 PM
Welll, you and I seem to be in the same situation. My current Gastroenterologist seems to think that I may have a "mixed bag'' so to speak of both crohn's and colitis. I am currently on 5 ASA Delzicol, it helps for the most part, but I still get pains here and there. My first flare was my worst, with bleeding, and diarrhea. Loss of electrolyte and essential fluids, requiring a hospital stay that should have lasted 4 days but was cut to 2 due to the cost involved. I take my meds as prescribed as I am sure you are doing, so the most I can say is give the medicine time to work> If you have been on it for longer than 2 months you should ask your digestive dr. about the dose or the timing of your medications. If you have taken them with food prior to meals by only 30 minutes try taking them with water 1 hour before you eat anything. Or 3 hours post meals. So it reaches the intestine where it can be released to work to allieviate your symptoms. I also have some pain in my joints that can come with crohns/colitis . Arthritis is common with IBD, just another ache to add to all the others. It is important to try to remember that others are going thru what you are, and to find something you enjoy. Painting, drawing, music,movies, family and friends. Sometimes just talking to someone who isn't personally involved can help. Someone who understands the severe pain of crohns colitis and the embarrassment symptoms can cause. I am here to talk if you need an ear to listen, or have questions. Megan40
megan40Joined Sep 30, 2013