Its 3:30 am.. my family is sleeping and here I sit again in pain. I stopped taking most of my medications over a year ago. I just couldn't afford them anymore and there were so many . My family was struggling financially and still is, I joined a natural medicine support site but that's not helping me.
I'm so sick of being sick and I feel so useless to my husband and children. I feel like I am more of a burden then a wife and mother. I have been under a lot of stress lately which I think is the cause of this most recent flare up and maybe its just adding to the depression I am already having. I've been on these sites a million times and have never does this. I chat online and play games, have made many friends, none of which know what I go through. I don't go out much anymore Its so easy to hide behind this screen.
But tonight when I woke up in pain and in tears this is where I ran.. I don't even know what I'm doing or what I'm trying to say. Maybe just killing time until the pain lessens. I have a heating pad on my back and one of my stomach I am so bloated right now I look pregnant.
I'm sorry if this makes no sense and I am babbling.. I just don't even know where to start.
Lost
Reply posted for overwhelmed39.
I'm really so sorry for you {{{{hugs}}}}}
Just want you to know that I read your post and am thinking about you. I truly hope you will go to a free clinic and get yourself some meds, you need it!!!! I used to get a lot of samples, please try something.
Let me know how you're doing!
I am sorry to read that you are having pain and cannot afford your medication. I understand that you want to try alternative methods. However it is still important to see a doctor and take any medication that he or she may recommend.
Many companies provide free medication. Check out www.needymeds.org to find free medication.
You can also get free and low cost care at a community health center http://www.hrsa.gov/gethealthcare/affordable/hillburton/index.html
Reply posted for overwhelmed39.
my email is zack.plog@gmail.com and i could even give you my phone number if you wanted it. i've been dealing with crohn's since september 7th, 2001. i'm 26 and just now about to step into marriage. one of the major issues i've had is actually finding someone who both understands my situation as well as someone who is okay with being the sole breadwinner. so. you have managed to find one of the best pillars for you: a loving spouse.
all that aside, the emotional *** of this disease without a medication to control it is indescribable. i've been on nearly every drug my doctor can throw at me and even a couple trial drugs with no success. i've tried plenty of natural remedies and nothing seems to work (save peppermint oil which seems to help the cramps a little). i've woken up hundreds of times unable to sleep from pain, even just last night, actually. i get a lot of what you're saying. i've been an extra weight to those around me...but it isn't a weight they don't gladly share. i know i wouldn't even remotely be the man i am without a loving group of people. i had a house church meeting in my apartment at one point...which was awesome...because even if i didn't feel like leaving i could still get that support.
i wish i could hug you right now...cause that's about the only response worth anything...
Reply posted for overwhelmed39.
Hi there, my name is Maggie, I understand the pain of flares. You are not alone. I was up last night with pain and pressure in my left side. I was diagnosed with left sided ulcerative colitis in May of 2012. I see how much these medications can cost also. I am on disability from a number of illnesses and think that the state may be able to help you with prescription assistance if you applied for it. I am here to talk to if you need to. Megan40