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especially he medical prfession

 Reply posted for gcrawford.

I understand how you all feel and I too have thought about ending it to and have came every close. &nbsp;It&#39;s very hard when your fighting an illness that doctors seem to do not understand. &nbsp;Over the past three years I have seen about 5 doctors for treatment and they still have not been able to agree on a treatment. &nbsp;2013 I missed 16 weeks of work and spent a week in the hospital, 2014 I missed 18 weeks of work and spent two weeks in the hospital as of 2015 I have been off work month and 1/2. &nbsp;Recently I was assigned to a new doctor that believes I may have been misdiagnosed....really this after having been treated since 2008, surgery in 2009 to have the beginning of my colon removed and part of my intestines. &nbsp;In 2013 due to the medication to treat my Crohns my liver and kidneys started to shut down and I now have arthritis.<br /> if this is not enough to drive me crazy I now have to see a phyic doctor because they believe my issues are all stress related and possibly only IBS.<br /> REALLY<br /> if I do not end up divorced and my 12 year old girl hating me it will be a miracle.<br /> i just want answers and quality treatment.<br /> PLEASE HELP

 Reply posted for gcrawford.

ask for help ..people care i care i understand been having a very difficult time taking care of my pets also but i do...i live alone and i had so much pain blood mucus and bathroom 50 × a day...you are not alone...this too shall pass i have been through this *** before and i kept going ....i promise it will eventually go away. ..get a good gastronolist and the right medication. ..you will make it dont loss hope keep the faith and alot of prayers

 Reply posted for sean d.

Hey Learn more about irritable bowel syndrome and symptoms to get best wellness.

 Reply posted for sean d.

Hi.  I just wanted to say I'm sorry for all you are going through and I understand and I care.  I have been living with Crohn's disease for about 14 years now.  It almost took my life once.  I have my moments where I feel like no one cares.  I recently became a mother to a sweet baby girl in March.  I was in remission thankfully during my pregnancy.  But for the past 3 months I have been in a flare.  I have spent the past few weeks feeling like an awful mother because I can't do the things I normally do for my precious daughter.  I finally had to realize that this is just a temporary set back.  I guess I am sharing this with you because I have felt like no one really cared or understood what I was going through especially now as a mom.  I googled Crohn's disease sucks and clicked on the images.  There are some really funny posters out there.  This may help you find some laughter.  Laughter is a great medicine.  If you need some one to listen and someone to care please feel free to reply to my post.  I am a listening, understanding, and caring ear if you need one!  I hope that any of this helps.

 Reply posted for sean d.

It doesn't matter how many times I beg for help. I posted desperate cries around the 18th, including here, affirming Josh. Now I have a life-threatening infection, that no one at the ER noticed on Monday, but a new PCP couldn't fail to notice on Thursday.
No one should have to do any of this alone. But I do.
I can't walk. I had to put my puppy in dog-sitting, so I'm even more lonely and depressed.
I'm worried about the mess I'll leave behind, like most dying people do.
But there are no replies. Ms. Lynch sent me the form letter, again, but now nothing.
My GI doc won't refer me to a pain center.

People are so ... inhuman. It seems like the more I drop hints (or expletives) that I'm desperately ill, the more they sat "Oh okay. Well, I hope you feel better!", & leave. No food. No offers to pick up Rx's. They won't even put out my trash. I put out my neighbors' trash without a second thought!

My "best" friend, or my sister - the thought of a phone call is laughable! Stopping by - you've gotta be kidding! "We've all got busy lives!"

I'm alone b/c NO ONE CARES.

WHERE IS THE FREAKIN' SUPPORT GROUP?!

 Reply posted for sean d.

My experience exactly.
Most of my symptoms are not in my digestive tract, so every assumes I'm fine. I have had 5 different doctors. And as for the friends, I have none. Bottom line: since my colon looks good, they just assume I'm lying or something. They see my records, and they're done. "You're fine." I called over 30 doctors, clinics etc. last week. No one will even talk to me.
And the friends? What a joke! I can no longer walk, prepare food, my pets are neglected (& they bring me more joy than anything!), & no one can even be bothered to get me some pepcid while they're at the store, and stop by with it! People from church: same thing.
NO ONE cares. NO ONE will help me at all.

 Reply posted for sean d.

Lots of people will listen and care.  We're all here in the same boat.  Sometimes you find out who real friends are, sometimes you've got to make some new ones.  Same with doctors.  Sadly there are some out there with very lax attitudes because they see it all day long.  But there are others who really make a difference.

I see a specialist in New York who is a superb clinician.  Multiple people in our NJ area have gone to him for second opinions.  He refuses to listen to other doctor's reports or referrals that come in.  He'll only take it directly from your mouth and then makes you go over every little detail.  He only wants first hand information because he says you never know what little detail makes all the difference.  My initial consultation was like 3 hours going over not only past history I knew, but potential things from childhood.  He's super thorough and seems like he hangs on every word.

It's just like getting friends - you just need to find the right doctor.  If yours doesn't seem like he cares, get a new one.  Even if it takes a couple of switches, the ones that are are out there.

 Reply posted for sean d.

Sean,
   It can feel like that sometimes and sometimes it is true about the medical profession.  I have to battle to get good care for my son all the time.  The world has become more connected in some ways but very disconnected and totally distracted in others.  I feel like it can be hard to have someone really listen to me.  I like the Smart Patients board.  It is a forum for people with all kinds of issues, including IBD.  They are all very kind and caring people.  I hope to see you there too!
Why dont you talk and I will listen?