Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

What to do?!?!?!


Sun, June 22, 2008 8:24 PM

Hi all,  I just don't know what to do anymore.... I am a single mom of a wonderful 4 year old who means the world to me.... I found out I had crohn's right after I had him... I  been on and off with work since then.  Now I am out of work cuz it has gotten so bad... I filed for disiblity but I am still waiting... I am fighting with my other half all the time and I know I can't have the stress but just don't know what to do anymore... I try to eat the right things and go to all my treatments.  I just so irate and witchy all the time now... Disiblity denied me and I have appealed but I am so scared I am not going to get it... My Dr wrote a note stating  I am unable to work.  I just have no idea what I am going to next.  How am I going to pay my bills and everything else you have to do in life.  I get pains prob like 2 a month and I am in the bathroom 5-6 times a day  more in the morning.  Sorry to vent everything but I know that is what this is for.  someone please help?

FPO cheryla
Joined Jun 22, 2008

Mon, June 23, 2008 3:37 PM

 Reply posted for Cheryla.

Cheryla,


i hope that responding to you is helpful as I do not think there is anything I can do other than empathize.    I also cannot tell you what to do.  I can tell you that I understand about the fear and the pain.  This disease can be merciless.  One problem after another piles up and it can seem overwhelming.  One thing that I have noticed is that every person I have met who has this disease is strong, smart, and resilient.  After dealing with IBD, there is nothing this life can throw at us that we cannot handle.  I know that for me, connecting with others that understand my situation has always been helpful.  I think setting up the online forum is one of the greatest things CCFA has done for us.

I spent 11 years suffering from this disease from 77 to 88 (I have colostomy bag since then and a grateful for it) Horrific details of my 11 years are not important here and now.  Since 88 I have not had a cramp, or needed to be on any medication, but to this day I work on PTSD from the horrors of this time past.  Appreciation of what I went through and work on today by others who understand has always been helpful to me.

I hope that you can use this online community to connect with folks that can offer you support, even if it is just a note like this.

I suggest that you respond to other's posts here even if no one else posts a response to you because I believe that being connected helps on lots of levels, even if only in our own heads.

Thanks CCFA for these forums!

Ivan

FPO nycivan
Joined Jun 19, 2008

Related Topics

Stunned by how much this ...
Author Image Alrightalright
Joined Sep 11, 2021



read more