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I am normally a very positive and happy out going woman.  I will be celebrating my 35th birthday in less than a week but i feel like I should be in my 70's. I don't complain to people or family or anybody about my Crohn's disease.  I don't want people to think of me as a complainer and i don't want people feeling sorry for me.
I just want to come on here and say, I'm tired!!! I'm tired of feeling bad.  Getting up and in the shower is a struggle. The nausea the bloating, the cramping, the diarrhea is sometimes more than i can bear. Work is a struggle.  balancing life with this disease can be challenging.. Sometimes i just want to run away! 

I don't know if this will help anyone else, but recently I decided to go into counseling/therapy... I wasn't able to find someone who specializes in chronic conditions, but my counselor is aware of the condition and wants me to educate her on it so she can help me... We've only just started our "journey" together, but already I feel better knowing that I'll have another appointment and someone I can talk to... She's already said that it sounds like I might still be grieving the loss of my "normal" life and just haven't accepted my "new" life.... (I was diagnosed three years ago...)

Living alone, out in the country, UC is hard to deal with sometimes...  To add to my interesting life, I also have an aortic aneurysm... I loathe relying on my friends to help because of how far the travel is... (Most of them also live out in the country but in various directions away from me, if that makes sense...)

Maybe that is something you can look in to?  It took me some research to find someone, but it might be worth the time...

 Reply posted for vbonkers.

I am exhausted all the time.  I don't even want to go to work or be around many people.  I am now on Entyvio and though I am in remission, the side effects are not good.  Aches, fatigue, headaches and pure exhaustion and lots of anxiety and depression.  I need to figure out a solution for the depression.

 Reply posted for mujuamy.

I have become so depressed and I don't want to be around anyone anymore. My boyfriend and I broke up because he just dsnt understand what I am going through, I feel very alone. It's hard to keep telling my 8 year old daughter we can't do certain things because mommy isn't feeling well again. 

 Reply posted for mujuamy.

I know the feelings all to well to stay positive some times is a battle all on its own. I wish I had answers for you, as I am in a similar situation though I have a few years on you (51 this year) I too am tired of the pain,lack of energy, the flippin hoops we must jump through to get help, lack. Of support the list goes on I am tired I have fought this fight from the time I was 7. It is a slight comfort knowing I am not alone in these feelings.

 Reply posted for mujuamy.

I feel the EXACT SAME WAY.  I'm close to the same age, and in grad school.  Doing anything seems like a struggle, when previously I was a very strong, independent person.  I still am, and I don't like pushing my issues on anyone else.  So I feel alone, and I too want to run away.  But you know, running will only aggravate your symptoms. ;)  (sorry, just trying to lighten the mood)  I'm not going to sit here and type about "how it will get better" or say "you're strong enough to push through it" because hearing that and feeling that are completely different things.  Just know that I, a total stranger, understand.  This isn't a pity party, it's a place to vent to someone (or to several people) who really and truly understands.

 Reply posted for mujuamy.

Hey, just read your post and I wanted to say, yea, being sick sucks. I too am usually a positive and happy person, but sometimes it just sucks. You feel like it's never going to get better and it's awful and you don't want to complain about it because a) it's gross and b) people really don't get it. I wish I talked to someone a long time ago who understood, but for whatever reason I didn't. This is my first post so I hope it's at least comforting that someone responded. Every single case of crohn's is different, but it does get better; better being a relative term. I say feel sad or mad when you want, so when things change and you don't feel like death, you can be happy and know you are happy instead of just being "on" and going through the motions. I never wanted to run away, I would just want to sit home and not bother anyone with my disease. I hope things turn around soon