Hi everyone
Mon, March 23, 2015 7:34 PM
Quick summary-diagnosed with ulcerative colitis in October of last year. Been on every drug possible it seems. Prednisone was my saving grace, enabling me to eat like a linebacker and forget I was sick. Then I started to taper and my body was like, noooo! Tried tapering twice with horrible effects. Currently on my third taper from it and I have only 10mg to go! Also on mercaptopurine/allopurinol and Simponi. That's all from my gastro doc. I'm also seeing a holistic doctor who has me on multiple supplements and enzymes which he believes will get my gut to heal. My nutritionist has me on a version of SCD, I'm restricted gluten/grains/legumes/nuts/dairy (oh, did I mention I work in a bakery?) and can only eat food that is cooked thoroughly and hot, as cold raw foods would wreak havoc on my inflamed gut. She's convinced that this diet will get me into remission.
Right now I'm still having cramps and flare ups like crazy. At first it used to be only in the morning and sometimes in the evening, but now it's pretty much cramps all the time. Sometimes I feel like my midsection is on fire. I worry that now I have to be near a bathroom at all times. Sometimes I wake in the middle of the night and have a flare up. My parents are helping to pay my medical bills and I feel like a burden. I cry almost every day. I worry I'll end up alone. I constantly blame myself that I got this. And, this makes me sound so self-absorbed, but I'm turning 30 this year and the thought of not being able to have real birthday cake personally depresses me.
I also feel terrible when I complain about all of this, as I've only dealt with this for months, where there are people who have had this for years. I feel as though I have no right to complain. I'm on here to feel less alone. Because maybe it won't make me feel like the emotional basketcase this disease has turned me into.
So if you read this, thanks for listening.
Jill
Joined Mar 23, 2015
Alrightalright