Feeling hopeless
Fri, June 03, 2016 5:47 AM
i am 15 and i was diagnosed with uc in january this year (2016) i have increasingly gotten worse since then and have been moving through the medicines each one not really helping me, i am on prednisolone now and fell *** and tired all the time and still don't feel any better and the doctors are thinking of moving me onto azathioprine which scares and upsets me. i just feel like im never going to get better (or at least be in remission) and i just feel hopless and upset and im not really sure if there is any particular question but if you have any tips for staying positive or just something that will give me peace of mind about medicine that would be so helpful, thanks for reading x
Joined Jun 3, 2016
Wed, August 10, 2016 12:36 AM
Reply posted for jessiecait31.
I know what you are going through. When I was first diagnosed I felt like I would never find remission or ever live a normal life again. I was on prednisone and I never slept which made me feel even worse. I was hospitalized from it a little over a year ago. I was on humira, lialda, canasa and prednisone. Finally I switched to a different specialist and he told me about azathioprine. I was also hesitant about starting a drug with "risks". My doctor explained that they all have risks but the risk of loosing my colon and having that much inflammation was far more dangerous. Long story short I started taking it and found remission within 4 or 5 months and am completely off prednisone. It was the only drug that ever gave me hope. It was the first time I felt normal again since I was diagnosed 3 years before.
taylormeghannJoined Aug 10, 2016
Tue, August 09, 2016 4:35 PM
Reply posted for jessiecait31.
<span style="font-size:14px;">For what it's worth, I was diagnosed with Crohn's at age 14. I'm now 71 and have had a productive and happy life. For me the emotional turning point was to accept my illness and try to go on with life despite any limitations at any given time. <br />
<br />
So, hang in there. Enjoy everything you are able to. You will not always be in the midst of this difficult flare up. This was a rare disease when I was first diagnosed, with only a couple of medications and virtually no research. So, you have hope. You will have a good life. Trust me. </span>
Joined Aug 8, 2016
Tue, August 02, 2016 7:29 PM
Reply posted for jessiecait31.
I kind of know how you feel. I am in college and spent all of last year plust the first couple months of this year in a really bad flare. We were adjusting my medication dosage and changed medicines a couple times, finally I started humira, it's working great. I had to keep telling myself that we would find something that would work, even though it was hard to do that when I was so sick all the time, I failed a semester and had to start over at a new college, talk about stressful, being sick like that and dealing with the mess with school almost pushed me over the edge. My suggestion is to read a lot of books to take your mind off what you're going through and maybe start talking to a therapist. I know this sucks but maybe this new medicine will help.
cyndll1Joined Jul 8, 2016
Sun, July 31, 2016 11:26 PM
I'm on both remicade and Azathioprine (imuran). I've been on remicade since November 2015 and it was helping but not enough to put me into remission so my doctor started the imuran in June. It seems to be helping so far with no new side effects yet. I was 27 when I was diagnosed. I can't imagine what you're going through being so young. I hope you start to feel better.
Joined Jun 17, 2015