ALONE...
Sun, August 17, 2008 12:00 AM
Well for 15 years living with Crohn's I have felt all alone...my family and husband and friends are very supportive...but they really don't know what it feels like! I never even thought to talk to people online! I have never even met anyone with Crohn's! It's nice for the first time in 15 years to know that there are people out there that feel exactly like me! Maybe this is a light at the end of the tunnel for me!
Since I've just had to start Humira b/c I have failed Remicade after 6 years, I've been feeling really down...but finding this discussion board gives me some hope! I hope that I am able to meet some people thru this and maybe talk thru email! It would be nice to talk to people who understand the pain, the need to use the bathroom at the drop of a hat...and everything else that comes with this disease!
If anyone ever wants to talk...let me know!!!
Joined Aug 15, 2008
Wed, October 08, 2008 12:00 AM
Reply posted for stepho24.
What you wrote is unreal, it sounds just like me. I feel alone all the time and at times I can't take it. I have great family and friends but my whole life I have been into sports and I still am and I look good so my friends say they understand but they really don't. and because you look ok they think your ok, I am always thinking where is a bathroom and I have to plan like crazy to go out to eat with them and being a guy from Brooklyn all we do is go out to eat LOL. I try to stay positive and talking to someone who feels they same will help. I would love to talk or chat so please e-mail me at AJC425 @AOL.COM.
Anthony
bklyn04Joined Apr 8, 2008
Thu, September 18, 2008 9:22 PM
Reply posted for stepho24.
I also had to switch to Humira because Remicade failed me. I actually built anitbodies to it and ended up with a staph infection. It is tough to talk to people who dont have the disease because they really can not understand what we deal with........as much as they want to and think they do they really have no idea. My boyfriend is actually pretty wonderful when it comes to this disease and makes sure I eat what I should and dont eat what I shouldnt but even he gets disappointed when we cant do things or I cant because of this disease. I know it is tough for him because we have two little ones also and when I am down he is the one taking care of them. I just take it as it comes one day at a time. If you ever want to chat or email you can find me on yahoo at sweetcheeks0105. Always nice to have someone to vent to that actually understands. Kim :)
Joined Mar 21, 2008
Sun, August 31, 2008 9:03 AM
Reply posted for stepho24.
I am new to Crohns and this support group. I am SO happy to have found so much support here.
What would we ever do without technology and the internet??? We don't have to go this alone. THANK GOD!
Welcome......I hope we can talk a lot. I need to learn more from other who have been through this. I have been throuhg 2 flares, one hospitalzation & am facing surgery. I am scared & confused.
I do have a very supportive family who I love dearly so that helps. My daughter-in-law is a nurse WOO HOO!!!! That makes my life SO much easier too. My other DIL is the type to take over. She will make me sit my butt down & she will clean, do laundry etc. My GIRLS know when I should take it easy before I do!!!!! I love my girls.
Keep reading the posts they do help. Talk to you soon.
Grammycarol
Joined Aug 3, 2008
Wed, August 20, 2008 12:00 AM
Reply posted for stepho24.
I just started Remicade 3 weeks ago...diagnosed with UC about 10 years ago and have never ever been in a remission period.
I know what you mean about feeling alone. Others are supportive, but they don't really know how we have to plan things and go over things in advance in our heads to make plans, where will the closest bathroom be? is there somewhere I can go lay down to relax if my I start hurting bad? Will people notice if I keep running in and out of the bathroom. They have no idea. The worst is when others will say gosh I have a stomach ache, it's just as bad as the ones you probably have. Very frustrating.
uckatie27Joined Aug 18, 2008