incredibly frustrated
Tue, November 18, 2008 9:12 AM
Hi,
I was just diagnosed with Chrons about a month ago by a doctor who had a jury duty appointment right after me...So basically he threw pentasa at me and said that he wanted to do another procedure where I swallow a little camera...It has been over a month and I can not get a hold of the nurse to see if my insurance went through to have the procedure and I am still not feeling well.
My big thing is naseau and constipation. I have been working with a nutrionist who has me off wheat, dairy and eggs after testing me for intolerances and it has helped with the constipation..but I continue to get naseaous every couple of days. I have antinaseau pills but then that makes me constipated. I get a couple of days normal and then bang..back to not eating due to my naseau.
My activitiy has dropped down to zero, I barely make it through my day at work. I am sooooo frustrated. I feel like I am being really proactive and getting nothing in return.
Joined Nov 18, 2008
Tue, December 09, 2008 1:00 AM
Reply posted for cladams.
Hello!
I, too was diagnosed with Crohn's not too long ago, and I'm amazed at how similar so many of these postings are to what I've experienced! (counter-acts the very alone feelings when none of your friends have any understanding of what you're going through!)
I had to switch MDs early on, as well. Definitely shop around. I figure: Crohn's will last a lifetime (with or without remissions), so it's worth the effort to find the right help.
And I've also started adjunctive nutritional therapy with a naturopath. It is frustrating though, no matter what I eat (bland, pureed, gluten-free blah blah) I still have pain!
Hang in there, keep writing here, keep a jounal to help you figure out what helps you. All best, krii
Joined Jan 22, 2009
Wed, November 19, 2008 8:27 AM
Reply posted for Kar.
haha
Wow, thanks everyone. I am going to get a new doctor! Sometimes I am not sure if I am just being impatient or overly dramatic. I appreciate the perspective.
Sincerely,
Christine
Joined Nov 18, 2008
Tue, November 18, 2008 11:32 PM
Reply posted for cladams.
It's unreal that you haven't heard anything from your doctor in a month!!!!!!! I'm not sure what type of insurance you have but my suggestion is to contact a University Medical Center in your area and ask if there is a hospital that has it's own IBD center. I live in Los Angeles and my daughter, who has UC, goes to a GREAT doctor out of a hospital that has it's own IBD center. Good luck and keep us posted : )
Joined Nov 9, 2008
Tue, November 18, 2008 3:53 PM
Reply posted for cladams.
Im sorry to hear that you have crohns and that you are having such a hard time.. Its never easy to hear such a diagonsis. I will never forget the day I found out I have crohns. Its been a long hard road but I want to share some encouragement with you. Dont ever give up.. Even when you feel you cant go on anymore (been there, lots of times..), Please dont give up... Find peace and strength in your higher power.. He will always be there to help lift you up and give you strength to fight this disease. "With God all things are possible." Matthew 19:26. I have found that through this struggle my faith has increased, because God has never let me down.. He is always there for support and love..
Im praying for you and your loved ones.. Stay connected to this website, its amazing and so are the people.. The kindness and love from the people here is a wonderful support for dealing with this disease..
Blessings,
Christy
Joined Sep 26, 2008
Tue, November 18, 2008 2:04 PM
Reply posted for cladams.
Sorry to hear you are not getting the relief you want. I would begin searching for a new GI doctor. Your doctor's office should be able to give you some sort of answer in a month's time. In the meantime, I would go to the doctor's office and sit there until you what you want. It's harder to ignore someone when they are right in front of you. Good luck.
Joined Aug 4, 2008
Alrightalright