CROHNS DISEASE- 26YR OLD FEMALE
Wed, May 27, 2009 1:48 PM
HELLO. MY names Ashley. and I am looking for someo people i can talk to via email and or telephone for support/help dealing with stuff.
I am having a terrible time with my crohns these days. Severe pains and bleeding. Got my first dose of Cimzia last monday. Having yet another colonoscopy friday to see if i have strictures since i am now constipated alot more then diahrea. i have severe severe pain after i eat. so now i eat like a bird. and its really taking a toll on my emotion well being. especially with work. i work at upmc cancer center. and i feeel like i am going to be 'let go' or fired for missing all these stupid days.
email me- beanneral@upmc.edu or kickinash21@hotmail.com
Thank you. i appreciate the support!!!!
Joined May 27, 2009
Fri, August 14, 2009 1:59 PM
Reply posted for kickinash21.
my son is 27 and was told 2 years ago..he has alot of bad days at work and goes though depression some days.i think he needs someone to talk with that's going though what he is..
momto5rlJoined Aug 14, 2009
Thu, August 13, 2009 12:00 AM
Reply posted for kickinash21.
57year old male,have had crohns since 1967 had six surgerys last one really did it.inow have short bowel disease.iwill be getting two more pints of blood tomorrow,that will make it twenty pints since Marchi will start cizmia Mondayto help with crohns.it does help to share with people with crohns so good luck and hang in there
paverJoined Jun 18, 2009
Mon, August 10, 2009 12:00 AM
Reply posted for kickinash21.
hi ashley!
my name is basmah. i am 21 years old and have been diagnosed with crohn's since i was 16 (bleh!). i understand how frustrating it can get - this summer especially has been *** for me; last month i was hospitalized twice and i was in the er a couple of days ago. but right now, i am trying my best to be optimistic and i know that things can only go up from here. i hope you are feeling better now than in may. having a bigger support group always helps, my email is basmah.a.ali@gmail.com. i am also on this website called wearecrohns.org (it's kind of like a facegroup for people with/supporters of ibd). it's very helpful!
Joined Jul 25, 2008
Tue, July 14, 2009 8:27 PM
Reply posted for kickinash21.
hello girls...I am also 26. First got sick at 15 and was miss diagnosed for 7 years! Most doctors told me I should see a shrink! I was finally diagnosed in college and have been trying to figure it out ever since. I often get depressed but try my very hardest to stay positive. It is nice to know that I am not alone in this battle! The best we can do is be positive and be healthy...
Joined Jul 14, 2009
Tue, June 02, 2009 9:11 PM
Reply posted for kickinash21.
Hi Ashley,
Sounds like were in pretty similar situations. I am also 26 and having a really bad flare. I was diagnosed at 8 and have been pretty lucky, I've only had a few really bad flares between then and now. I just cant seem to shake this one, every time I think I'm getting better I wind up right back where I started. I've tried every medication my Dr has thrown at me (had a really bad reaction to Remicade) and alternative treatments (which seem to help more than conventional in my case!), and I'm still not well. I feel like I'm just going to be sick will be forever.
I also feel really bad about missing work but filed for FMLA. My co-workers are very understanding. I'm kind of a work-aholic, and will push myself to the very end to be there, even though I know it's not the right thing to do.
Thankfully my boyfriend is very supportive, but I know this is stressful for him as well.
Sorry for the long post. I guess what I mean to say is: if your looking for someone to talk to please email me BeachbumOT@gmail.com.
Kim
beachbumotJoined Jun 2, 2009