Finally joined after reading so many stories that are very similar to mine. I was diagnosed with UC in 2000. I have had more years of remission one lasting 4 years, the other 3years. My last flare up began Christmas last year and lasted until July. I thought it was over for a while, and to my dismay it came back with vengeance the first of November. I was just sitting here alone while my family is having Thanksgiving without me. My UC is keeping me home today. I just feel lonely and sad at the moment. Staying positive has been a challenge this year! I just want control over my body and I am not getting it.
Reply posted for missliss.
If you do not think the Asacol is not working, make some phone calls. No one is going to speak up for yourself - only you can. You don't have to live in this type of pain.
I am seeing a therapist to work through my CD, (we've exhausted all meds, nothing left for me to take), and I believe it is going to make a huge difference in my attitude. I wanted this (therapy) and I'm very fortunate to have EAP where I work to help.
Keep the faith!
Reply posted for missliss.
Hope things are stabilizing for you... sharing problems helps and sometimes even brings solutions; but it rough going through it -- keep us posted! Lynn
Reply posted for wannabeucfree.
Thank you for the well wishes. I am taking Asacol which I think makes everything worse, and Rowasa enemas. The last few days I have been in bed resting as much as possible. Today was a better day still YUCK but better.
Reply posted for missliss.
Good luck to you. It is so hard to know what the triggers are, and what will cause a flare-up. My recent flare is calming down, still have issues, but making progress. I hope yours will calm down soon-- are you taking medications? I am wondering if there is any same-ness about flares-- (being recently diagnosed, I realize that the past 5 years or so have been a progressively worsening flare-with plateaus!). So coming out of it has been also slow, with some missteps. Hang in there!
Reply posted for missliss.
I give you sooooo much credit for staying home!!!! I know you know this but you need to take care of yourself and I'm glad you are. Don't be too sad. I'm sorry you're lonely but you are obviously a very strong woman. I have UC and CD and it gets to me, too. I want to say no to more things and will get to that point some day, I hope. Have a great day/night, I don't know what time it is where you are and hopefully tomorrow will be better!
ngc