Need to vent
Thu, December 31, 2009 1:00 AM
I just need to vent . . .
I was diagnosed with Crohn's 16 months ago and have since been on Remicade. It has been great; really helped heal my fistulas. The only problem I have sometimes is mentally/emotionally dealing with having a chronic disease and being on a very serious medication. I have been very fortunate and have not gotten many illnesses or infections since being on Remicade, but anytime I do get sick I feel paranoid that it can turn into something serious. I have never been a hypocondriac and I hate being this way! I'm only 28 and I feel angry sometimes that I have to go through this (although I don't allow myself to wallow in self pity for too long). Anyways, I just needed to vent to people that understand my situation. My family is very supportive, but they don't know what it's like.
lizchurch03Joined Oct 18, 2008
Sun, January 10, 2010 1:14 PM
Reply posted for lizchurch03.
hey guys,
I saw this post and could really use the support I suppose. Im almost 21 years old, and was diagnosed with Crohns disease when I was 15. At that time I had surgery and went into remission for about two years. During those 2 years I was on several medications including(but not limited to) Asacol, pentasa, lialda, and 6mp...all which gave me severe side effects. After trying these medications which obviously had little to no success, I discussed with my GI the idea of taking me off the daily medications, as they were making me feel extremely ill and rundown everyday. So thats what we decided to do.
My parents have been the least supportive of me having Crohns and about the decisions I have made. They often blame me for the current state of my health (saying its my fault I dont feel well because I stopped the meds, that I go out and party too much, which I go out on average twice a week), they dont go to any of my appointments/tests and dont help me pay my medical bills.
I'm in the process of moving out of my parents house, to live with a friend at a local horse rescue, and I recently obtained the funding to go to my local community college. My dream of serving in the US military was smashed into pieces because of Crohn's, which I often have a REALLY hard time dealing with. Lately I find myself feeling worthless, that I've accomplished nothing, angry and sad and need some advice on how to cope
Thanks,
Jen
Joined Jul 29, 2008
Fri, January 08, 2010 1:05 PM
Reply posted for lizchurch03.
I know how you feel! I am 28 too and I feel the same way. Most days are fine, but every now and then, I just want to cry! It is hard to understand why things happen the way they do. I think that it is a natural reaction to be frustrated, especially when coping with a disease that will be with us for life.
Joined Jan 8, 2010
Fri, January 01, 2010 1:00 AM
Reply posted for lizchurch03.
I agree, we all need to vent. It can be scary, some people just seem to be able to roll with the punches, others get almost paralyzed. I am the second type but have found that time helps. It's hard not to imagine we are THE ONE to have a bad effect but really given the number of IBD people out there really serious reactions are not all that common and when they do happen they are manageable. I have been reading that with the discovery of more then 200 genes connected to IBD there will be better treatments and more tailored to an individual within five years. I find that hopeful. Venting is good.
Joined Sep 1, 2008
Fri, January 01, 2010 1:00 AM
Reply posted for lizchurch03.
I think your reaction is very normal. Many people who have dealt with serious health issues would react the same way. I have found that when I accept how I feel, rather than fight it, the feelings become less important. Maybe talking with a therapist could help--- venting here is excellent!
Joined May 20, 2023