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stopped my meds

Fri, January 08, 2010 6:05 PM

hey not sure why I'm writing this, but thought maybe it would make me feel better to get it out somewhere. I quit taking my meds 2 days ago (pred and pentasa) and feel really good. well, my stomach hurts super bad (but when doesn't it?), but my energy is through the roof. I actually mopped the kitchen today! I guess I know that it's going to catch up with me, I thought I would feel bad as soon as I stopped, but hasn't really happened yet. I think what I'm trying to say is that if I stop taking meds and stop thinking that I'm sick, maybe I won't be sick anymore. Atleast I won't be so depressed about my life being over if I tell myself I'm not sick.

hope2skiagain
Joined Jul 22, 2009

Sat, January 09, 2010 6:01 PM

Reply posted for hope2skiagain.

I know how you feel and I've wanted to stop my meds as well but have always been to scare to do it. I hope that you feel better and maybe your doctor can either change your regimen or dosage so you can get back to skiing

magonza8279
Joined Mar 18, 2009

Sat, January 09, 2010 2:57 PM

Reply posted for hope2skiagain.

I would call the docs. answering service. You don't want to fool around with the pred. No one here is a doctor,( I don't think ) and stopping and starting may be a bit tricky. Pred is the one thing we can't stop cold turkey, don't be afraid to call, there's a moment of embarrassment but better that then being sick.

titan1
Joined Sep 1, 2008

Sat, January 09, 2010 1:17 PM

Reply posted for hope2skiagain.

Well, I guess I'm sick. I went a couple days of feeling great, but woke up this morning with a fever, rash, pain, and of course the most delightful part of this whole disease. I think I'm sicker than before. Does anyone know if I can just start taking my meds again? It's a saturday, so no way to ask the doc.

maybe the guy in another post that said high doses atleast provide for a quality of life for a time instead of a crappy longer existince w/ lower meds is right. I'm just gonna start slamming the pills I think. Atleast I'll be able to ski this winter instead of laying in bed super sick.

hope2skiagain
Joined Jul 22, 2009

Sat, January 09, 2010 12:42 PM

Reply posted for hope2skiagain.

i've thought about this many times but am afraid to make things worse....ever since i was a little girl all I've wanted was to grow up and be a mommy. now that my husband and i are talking about having kids i'm so afraid that this stupid disease will prevent that! i keep hoping that maybe i can "think" myself well. they always talk about how strong the mind is and how powerful and the self fulfilling prophesy and all that.....long story short, the meds help keep us healthy but sometimes the side effects are almost worse than the actual symptoms of the disease... not really sure if i'm of much help other than letting you know you're not alone....

runnergirl10
Joined Dec 20, 2009

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