Genetically Defective
Mon, January 18, 2010 1:00 AM
I've had Crohn's since 1964 but, the past 2 years have been a nightmare. I've had surgeries in 1964 and 1979. Never was given any medication and never had a gastroenterologist. The past 2 years after I had my gallbladder out have been a nightmare. If I was out with a group at a restaurant I was always asked why I didn't eat certain foods. When I said that I had Crohn's 8 out of 10 people would say "What's that" When I tried to explain, they didn't want to hear it. Now I tell people that I was born genetically defective and 8 out of 10 people will say "that's too bad" and drop it. I've accepted my disease and go on with life. I've been alone for 22 years and would not even consider a relationship with anyone who did not have a medical problem themselves. My kids are more accepting and tolerant of my problems than their father ever was. I'm not looking for sympathy. I only posted this so people who are having issues with acceptance from others can see how I've dealt with it.
Joined Jun 4, 2008
Fri, February 26, 2010 1:00 AM
Reply posted for Aaroneet.
My two cents is that I think you need new friends, but I can't imagine being diagnosed at a time when so little was known and when so few resources were available. My personal coping mechanism has always been to compare my situation to people more sick than me. For example, when first diagnosed in 1994 at the age of twelve I was really depressed until I got a six-year-old with leukemia as my hospital roommate. That sure put things in perspective! Which is not to say I don't still throw myself the traditional pity-party when I'm flaring up, and I definitely have anger issues with regards to the incredibly stupid things people will say, but that's when you give them a little something called "too much information" to put them in their place. It's hard not to get angry when people are stupid about it, but eff
those people! EVERYBODY POOPS. Just some more than others (and with
blood or no control). I started my blog (www.lilcrohnsie.blogspot.com)
for the express purpose of helping others with IBD overcome the
embarrassment and frustration of dealing with people who don't get what
IBD is. You should NOT have to tell people you're genetically defective, and the more you tell yourself that the worse you're going to feel about yourself. And more importantly you shouldn't have to hide something that plays such a huge role in your life. Be as private as you want to be because of you, not because of other people.
j9fleriJoined Jun 6, 2008
Wed, January 27, 2010 8:32 PM
Reply posted for marilynaz.
I never thought my source of anguish would be another's inspiration. Or am I taking too much credit?
Joined Oct 19, 2009