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where do i start. Have had uc for ten years now.slowly getting worse as the years go by.As my DR says ,I`m like a rollercoster. Up and down. Never really go in to remission. Get up every moring with nasusa. many BM. head to work at 10:00.Most days by 12:00. feel better.never know what is coming but i keep on going.I refuse to let this rule my world.Some days i think I might just stay home and never go out again, but then out i go.Do the best i can, then do it all again tomorrow..For now this works for me. the nasusa is the worst, if anyone has any ideas i that would love to hear them.

 Reply posted for katya.

Thank you . Sounds like you have the right idea. I am learning that its ok to do whats best for me.No more stress in my life.... Working on that. Hope things go well for you and your loved ones.

 Reply posted for Bren55.

This year was my 11th Wedding Anniversary, and 10 years with IBD.  After two surgeons said " No surgical option"; I had to reassess my life.  I had to redefine what I want, what I have, what I accept.  I went to a counselor weekly for about 4 months to grieve and build forward with a new future.  I am so very thankful for the counseling and my team of health care providers......because we all know stress makes us worse.  6 months ago my spouse was in a terrible accident and broke his neck.  Historically that would have sent me into a medical tailspin.  But I survived.  He survived.  life changed.  It will continue to change. And I am living with whatever time or life I have to the best that I can at any given time.  I have let go of a lot of expectations and stress.  My best coping skill after 10 years: GIVE YOURSELF PERMISSION.

 Reply posted for alivein315.

Thank you .I hope you find something that works for you to. By the way Granma`s are the best......

 Reply posted for Lca.

thanks Lca I`m going to look into that I`m willing to try anything healthy.

 Reply posted for Bren55.

Bren,

I had uc for five years slowly getting worse and other minor auto-immune symptoms started to appear. I  could have written your words!
Four years ago I started the scd diet and looking back I have seen gradual improvement ever since and I have control over minor flares (and can nearly always see what caused them). Read about scd and also Life Without Bread about the health benefits of low carb eating. It makes a huge difference  and some symptoms can be controlled quite quickly but I think the real deep healing is slow.
Now people I only see occasionally often ask why I seem so much younger when everyone else is getting older, and quite a few friends just starting to suffer from chronic health problems (must be my age!!) have started to get interested in my 'peculiar' eating habits.

 Reply posted for Bren55.

I do know what the nausea is like.  It's the worst.  I've been fortunate these past 2 months with minimal pain and cramping. 

 Reply posted for Zinnia.

Thanks zinnia, It helps just knowing we are not alone. I never give up.Just give it my best each day. I know what you mean about doctors. They don`t want you to be to informed...But i have one who really listens and follows my lead most of the time so that helps he always says that I know my body better then anyone. Not sure about that one( LOL). I hope things go well for you also.. Hang in there.

 Reply posted for Bren55.

Hi Bren55,

That sounds really tough.  I can relate, because I have Crohn's and it has really effected my life in some bad ways, too.

I have tried alot of things and am now on Humira.  I am also, for really the first time, trying some complementary medicine.

I guess the only advice I can think to give is don't give up, because things are always changing. 

I have always advocated for myself, too.  I switch doctors when I feel like a doctor is not listening or helping my condition.  I do tons of research in order to understand what's going on with my body.  Even if some doctors don't like it when patients are informed and ask questions, I feel like it's my right, because it's my body.

I just wanted to let you know that you're not alone. I hope that somewhere you find something that makes a difference with your UC.  My thoughts are with you.

Take care,

Zinnia