Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Crohn's has spread


Fri, September 03, 2010 9:03 PM

Hello everyone,   I have had my first colonoscopy in 5 years on thursday, and although I do not know all of the results yet, I know that they are not good.  Before this test, my crohn's has only been in my ileum, and has been kept under control with imuran. At least I thought it was under control. 

  The doctor told me, while I was still half asleep, that they did a bunch of biopsies, and although she can't say for sure, my crohn's has now spread to my colon.  She wouldn't give me any more information than that, until the results came back, which could be up to two weeks.  That part is going to drive me insane.  I hate waiting for results, especially when I think they are on the negative side. 

Now my emotions are a wreck!   I don't know how to feel now that my crohn's has really taken a negative step downhill.  I have always been so stable and this is such a big shake up to me.  My thoughts are becoming even more negative, because I don't know the full results, like that I will have to have sugury or that there are cancerous cells.  I know that I am just freaking myself out, but being anxious is my nature.  If anyone else has dealt with this type of situation, I could really use some words of advice or support.  I just hate thinking that crohn's is taking over even an inch more of me. 

FPO mack2380
Joined Sep 3, 2010

Sun, September 05, 2010 4:06 PM

 Reply posted for mack2380.

Having Crohn's in more then one part of your intestinal track is common with Crohn's so that in itself isn't the worst thing. The medication that you can take can be adjusted so it work "everywhere". As far as cancer cells...well, if  you can try not to jump to that conclusion. Where as cancer of the GI tract is somewhat more common with IBD it's not at all a certainty and there's no reason to believe you have any cancer cells at all. 


If you can keep calm now that will help. Wait for the doc. to make some suggestions then make your decisions. It's hard not to jump to the worse case scenario, but really most of the time you can be using up good energy on something that probably isn't. 

Good luck..take a few deep breaths

FPO titan1
Joined Sep 1, 2008

Related Topics

Stunned by how much this ...
Author Image Alrightalright
Joined Sep 11, 2021



read more