Hello everyone, I have had my first colonoscopy in 5 years on thursday, and although I do not know all of the results yet, I know that they are not good. Before this test, my crohn's has only been in my ileum, and has been kept under control with imuran. At least I thought it was under control.
The doctor told me, while I was still half asleep, that they did a bunch of biopsies, and although she can't say for sure, my crohn's has now spread to my colon. She wouldn't give me any more information than that, until the results came back, which could be up to two weeks. That part is going to drive me insane. I hate waiting for results, especially when I think they are on the negative side.
Now my emotions are a wreck! I don't know how to feel now that my crohn's has really taken a negative step downhill. I have always been so stable and this is such a big shake up to me. My thoughts are becoming even more negative, because I don't know the full results, like that I will have to have sugury or that there are cancerous cells. I know that I am just freaking myself out, but being anxious is my nature. If anyone else has dealt with this type of situation, I could really use some words of advice or support. I just hate thinking that crohn's is taking over even an inch more of me.
Reply posted for mack2380.
Having Crohn's in more then one part of your intestinal track is common with Crohn's so that in itself isn't the worst thing. The medication that you can take can be adjusted so it work "everywhere". As far as cancer cells...well, if you can try not to jump to that conclusion. Where as cancer of the GI tract is somewhat more common with IBD it's not at all a certainty and there's no reason to believe you have any cancer cells at all.