Crohn's and alcohol
Wed, January 05, 2011 9:58 AM
I was diagnosed with crohn's early in 2010. I have tried Pentasa, Nexium, Endicort, 6mp and Prednisone, possibly Humera next. I continue to vomit and have 6-8 bowels movements a day. In addition the 6mp and Prednisone have practically rendered my immune system useless. I have had the flu/cold for over a month. I have become depressed to the point where I feel like nothing will work.
On a positive side I recently had a colonoscopy during a 3 day hospital stay and my insides looked pretty good. However I have not been able to work for a month, am fighting with insurance companies and trying to get the right paperwork to the right people, worrying about losing my job/health insurance.
In addition I still vomit and have movements that wake me up during the night or cause pain everyday. I have become depressed at what my life has become and have started to see a shrink for help. However I am now abusing alcohol to forget about all these problems to the point where my family and I have decided I should go to some meetings for help. I know this doesn't help my disease, but I feel like I am either always starving or sick to my stomach and alcohol puts me in the middle, like I used to feel. I am 25 and feel like I have to live like I am an old man. Sometimes I even still have accidents.
I am really not sure what to do anymore. I have tried gluten free diets and the specific carb diet. No matter what I vomit every morning practically whether its food or bile. And the bowel movements are ruining my ability to live a normal live. Sometimes the pain in my lower right side is so intense I cannot stand.
I also have General Anxiety Disorder which makes my symptoms much worse when my anxiety is bad. I guess thats why alcohol helps as well. This is my first post, first time to this website and I guess I am trying to seek any advice or if anyone has had a similar experience. Thank you for reading and I appreciate any help.
steviec126Joined Jan 5, 2011
Thu, January 06, 2011 1:00 AM
Reply posted for mwunrow.
Thanl you mwunrow for reply. I dont want to seem ungrateful.
steviec126Joined Jan 5, 2011
Thu, January 06, 2011 1:00 AM
Reply posted for mwunrow.
its hard to not feel alone when i cannot find any support groups in NH, closest one is 1.5 hrs away once per month. WTF? I can Find an AA meeting any day, any time but if i need support for crohn's its once per month? I'm not qualified to run a group but if any is from NH we need help!
steviec126Joined Jan 5, 2011
Wed, January 05, 2011 8:23 PM
Reply posted for steviec126.
I feel your pain. I am not sure I can be of much help, but I wanted to let you know you are not alone. I have many days where I am in such bad pain that I can not stand/ walk/and have a hard time moving. I recently spent Christmas day in bed by myself because I was in so much pain that I could not move. I have often been getting ready for work and then get hit with a pain that cripples me. Often my husband has to help me to bed or the couch because I can't get there on my own because the pain is so bad.I have found that in addition to the pain meds, a heat pack helps to release the pain, but some find ice works too. I have been out of work on medical leave for a month after only being back from my other medical leave for a month.
There are times when I want to eat but know if i do it is just going to cause pain, but I still need to eat right? Well, one thing i found that helped be for a, little while was a liquid diet i drank a lot of smoothies and ensure, until I was able to have food without lots of pain.
As far as alcohol, I find it make my Crohn's worse, and there are some meds that if you are taking them you can not drink. It is one think that you are seeing that this is not a good thing and are asking for help. i hope you can find it and that you Crohn's gets better. Just know you are not alone!
Joined Nov 22, 2010