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Fistula

Sun, January 15, 2012 2:04 PM

Anyone had a fistula if so? Did you have it repaired I have Colitis.

annl
Joined Jan 15, 2012

Wed, April 04, 2012 2:15 AM

Reply posted for annl.

I know its kinda a late reply, but I have had some issuses with fistulas in the past. Actually, its how I got diagnosed. Not sure how it ended up for you or if your still living with it, but I actually had about 6-12 ft of my small intestines and half my colon takin out because of them a few years ago. Your surgeon makes a huge difference, He saved me from having to have a bag, but I am sure one of these day it will happen. If you have any questions I am more than happy to answer them

houndsy01
Joined Dec 25, 2008

Fri, March 02, 2012 4:42 PM

Reply posted for annl.

Hi a year and a half ago I had 3. they were bad enough (I was in a lot of pain and had a lot of swelling) that I had to have them taken care of.

tcrazy
Joined Mar 2, 2012

Mon, February 27, 2012 8:33 PM

Reply posted for Hockey Rocks.

High dose Remicade has helped me. While the fistula is not closed it has made a dramatic difference.

mrspooh1
Joined Feb 27, 2012

Mon, February 27, 2012 8:31 PM

Reply posted for annl.

Long history of Crohn's Disease and a 8 year history recta-vaginal fistula. Make sure you are with doctors who specialize in fistulas related to Crohn's and Colitis. If your insurance allows you, you may consider going to a specialist out of your area. Ask your doctor and the surgeon the question: "How many Crohn's/ Colitis fistula patients do you have?"
If the number is low, search for a specialist who treats many fistula patients. So sorry you are suffering from a fistula!

mrspooh1
Joined Feb 27, 2012

Tue, January 17, 2012 5:18 AM

Reply posted for annl.

The stomach dotoct stomach doctor is senting me to a surgen not sure when that will be but the stoamch doctor says they cant take care of the fistula unless they take out part of the colon and that means a bag and i wont have a bag

annl
Joined Jan 15, 2012

Tue, January 17, 2012 5:16 AM

Reply posted for annl.

My stomach doctor is making me an appt with the surgen so I am not sure when that appt isbut the stomach doctor is saying they cant fix the fistula unless they take part of the colon out and give me a bag and i wont have that

annl
Joined Jan 15, 2012

Mon, January 16, 2012 6:46 PM

Reply posted for annl.

Hey Annl,

My fistulas were sorta constant and medication and going into the O.R. to work on them had been just a quick fix basically. I do know that its really important to say the least to stay on top of them. Talking to a GI doctor or a colon rectal surgeon would be the best thing more then anything. Do you have a GI doctor you like and have started a game plan on how to treat them?

hockey rocks
Joined Aug 5, 2009

Mon, January 16, 2012 4:10 PM

Reply posted for Hockey Rocks.

Please let me know anything you know about the I have had coilits since 1996 ust found out I had a fistua

annl
Joined Jan 15, 2012

Mon, January 16, 2012 12:15 PM

Hey anni,
I have had Crohn's Disease for a long time, but I have had multiple fistulas. How long have you had UC for? Fistulas had been always a big problem with me and have had them worked on during operations for the Crohn's. Have you talked to a Colon Rectal Surgeon or your GI doctor about it? Medication can treat them as well to. My story is long with the CD, but I will certainly let you know what I know about them and my situation with handling them, just let me know anytime?

Get well!,

Andrew

hockey rocks
Joined Aug 5, 2009

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