i need emotional support started taking humira
Sat, October 06, 2012 4:39 PM
Hey everyone, my name is marlena and i have crohn's disease. sometimes it's hard for me to get out of the bed just because i have to think about what life is like for me dealing with cd. Sometimes I wonder what my life would be like if i didn't have cd ,or didn't have to take meds for cd and a host of different conditions i have as well. I hate that i have no one to talk to about my cd, I feel sometimes so alone because i feel no one understands what it's like what you go through on a daily basis with taking meds like humira or anything biologic like remicade. is there someone out that understands what i'm going through and can give me some good sound advice as to what to do to deal with the feeling of being angry and being pissed off all the time
Joined Sep 8, 2012
Sat, October 20, 2012 6:53 PM
Reply posted for marlenad018.
I think it is definitely important to find people you can talk to. I have had UC for 6 years now. At first it was very embarrassing and I did not want to talk to anyone about it.. However, I have pretty much let that guard down. I have not had very good luck in keeping my UC under control. However, I feel better by allowing people to help me. That has been a challenge for me. I was used to being independent and very proud of my job. I still have issues with this, but I am doing better at letting others in. I hate feeling like a have to rely on anyone, but with this disease that is just a reality. I wish you the best.
I have heard some people have really good results with some of the medications. I had to stop taking the predisone because it literally made me crazy. I actually kicked out the screen of my upstairs window and was sitting in the window seal. Fortunately I realized what was going on and called someone to watch over me until I was weaned off the medication. Please make sure to watch how you are reacting to any of these drugs that are given to you. Things can turn bad fairly quickly.
Take care and keep coming back. I just signed up for this forum and am really enjoying communicating with people who have the same issues as me.
Joined Oct 20, 2012
Thu, October 18, 2012 5:26 PM
Reply posted for marlenad018.
Hi Marlena,
This forum is a great way for folks with similar trials to talk, relate, an support each other. I was diagnosed with UC this summer. I honestly think that the church and my Sunday School class got me through the first part - prayer is a saviour. This helped me from feeling angry or so afraid. It was so very scary in the hospital, not knowing what was going on, depending on doctors so much - I'd never been so sick before. Have your medications started working? Are you taking prednisone? That drug really changed my emotional well-being while I was on it. I couldn't think clearly at all, would get depressed or really concerned about things easily. I'm learning from reading posts that everyone's reactions to these diseases is different, but we all care about each other.
Take care - write back to let me know how you're doing:)
Kim
kimarJoined Sep 1, 2012