Remicade, Humeria, M6, and Surgery
Sat, February 02, 2013 3:29 PM
Hey guys.
So I went to my new Crohn's doctor Thursday and...turns out I have moderate to sever Crohn's.
My new dr is VERY mad at my old one because he didnt do anything for my Crohn's at all. He basically covered it up. So I'll have tobe put on eother Remicade, Humeria, or M6.
If anyone has been on any of these, could u tell me about it please? I'm very scared...
My dr says hed rather me have the surgery cuz its so bad...but either way I'll be put on the meds. So if you could tell me about the surgery and the meds I'd be very very grateful.
Here's my FB page for those with IBD and Crohn's. I'm not forcin anyone to join or whatever but...its just for those who have no voice about it. - https://www.facebook.com/pages/A-Voice-to-Be-Heard/308196329299708
Joined Dec 21, 2012
Sat, March 30, 2013 12:15 AM
Reply posted for collegegirl67.
I suffered for 2 years before I had my surgery. Fired 2 GI's in the process. I had a fistula in my small colon that tunneled to my bladder. Not a very good experience. Everything that passed through my colon dropped I to my bladder. Trying to pee felt like dying. Anyways I we t to an Urologist who seen it right away, but my 2nd GI didn't , and would do nothing about it. A surgeon ( person #3) was brought in the discussion, and finally my GI decided to agree on surgery. After surgery, I felt like a new person and use Humira injections as maintenance. It's just a shame I had to struggle for 2 years while Dr. Argued who was right 😣
Joined Mar 29, 2013
Fri, March 01, 2013 2:01 AM
Reply posted for CollegeGirl67.
I was on remicade and felt fine at first then the side affects hit me like a rock. My experience tells you not to take remicade or humira. Humira is the same thing as remicade except it uses a protein from a different source than remicade and you have to inject humira yourself. I had the surgery and wish I would have had it sooner. I feel great and I am now symptom free.
kreet02Joined Nov 18, 2012
Tue, February 05, 2013 1:42 PM
Reply posted for CollegeGirl67.
Hi!
I'm on Remicade, and for me, it is the most amazing thing EVER. I know it is associated with a lot of dangerous side effects, but I still love it. I was having bad flares and couldn't walk for more than a few minutes without having to run to the bathroom. Now I'm doing pretty well, and am not flaring. I wish I had tried this earlier. I can't guarantee it will work for you, as we all know the medicines affect everyone differently, but it's worth a shot! I go into the infusion clinic at my hospital in the morning, and get the medicine (not sure how much you know about Remicade, so sorry for over explaining things if you already know). It's an IV and you sit there for about 3 hours and then you're done. Normally I have to block the day off because the medicine makes me exhausted, I have my dad drop me off and pick me up, and I just sleep the rest of the day. Good luck!
btw, I have Crohn's too, w/ small intestine involvement in case you were wondering :)
ashJoined Feb 22, 2011