Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Previous Topic Next Topic

Low Grade Dysplasia and Crohn's

Wed, January 21, 2015 1:51 PM

I was diagnosed with Crohn's at 16 years old (30 years ago) and have lived a relatively "normal" life, no additional hospital stays and very few flare ups...I am able to remain in remission with Imuran treatments....After my recent colonoscopy, a flat legion presented with Low Grade dysplasia. Doc's are recommending Removal of Colon with resection on small intestine to rectum. I am concerned about life after surgery and how this will effect my quality of living. Anyone have any experience with this surgery and what I can expect ?

Thansk much !

cnastro
Joined Apr 15, 2014

Tue, January 27, 2015 12:45 PM

Reply posted for cnastro.

It's a 2 part procedure. After the first surgery you'll have a colostomy bag with a double ileostomy. You need a couple weeks to a month to recover. If you're sexually active this will be a problem, the bags are a drag. The 2nd surgery is attaching your J-Pouch and closing the ostomy. Make sure you don't have a blockage, due to scar tissue, before you leave the hospital! If you have a blockage, you'll end up back in the emergency room. My father and I both had bad experiences, so be sooo careful. You'll have more frequent b/m's and lose 20lbs. Good luck to you, and hope this helps. I'm just giving it to you in a basic sense. Your recovery time depends on how fast your new j-pouch adapts.

1stigmata1
Joined Jan 27, 2015

Tue, January 27, 2015 12:24 PM

Reply posted for 1stigmata1.

thank you for your response...yes, my doctor is recommending a colectomy for low grade dysplasia found on my last colonscopy.
because it is a flat lesion, His concern is that there may be a more serious pathology looming beneath the lesion. I am reluctant to have this surgery for fear that it will disable me. I live a full active life and have been fortunate enough not to have any Crohn's issues that interfere with my life and work. I was hoping someone could tell me what I could expect my life to be after the surgery.

Thanks so much for your time

cnastro
Joined Apr 15, 2014

Tue, January 27, 2015 2:21 AM

Reply posted for cnastro.

Are you talking about a collectomy? If so, I had the 2 part procedure done in 2008. I can answer a lot, if not all.of your questions.

1stigmata1
Joined Jan 27, 2015

Related Topics

Small bowel resection

jess123
Joined Jan 9, 2022

Hi, I'm preparing to have an ileocecal resecti....

read more

Issues after complete sur...

Rolo
Joined Feb 25, 2024

Hello, I have had all 3 surgeries to complete m....

read more

Ostomy Support

JohnWalsh
Joined Dec 11, 2023

Are there wound care experts or professionals that....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.