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frustrated!


Fri, June 27, 2008 8:10 PM

hi everyone!

hope everyone is doing well. i have a question ,, has anyone had part of their small and large intestines removed? well i had a re section on april 8th of this year and i had c-diff from the surgery and that is now resolved, but now i have these knock to my knees spasms. they did a CT scan on my this past monday and they said that it looks better then when i had my surgery and that i should still continue to take my imuran and entocort but they  are now putting my on cipro(anti bodics).  now i have to go for a colonoscopy and i hate them,,, as i am sure we all do. but there is my question... has anyone had these spasms? i am just reall y nervous again.. this was how i was before i had my surgery and it was almost completly blocked.  so i guess we shall see what the colonoscopy says.... just really tired of this disease. i work full time and i start school again after being out for over a year due to my crohns colitis. i need some encouraging words:( any advice is welcomed!

FPO jackie1980
Joined Jun 27, 2008

Fri, July 18, 2008 6:40 AM

 Reply posted for Jackie1980.

Hi-Was wondering how you are doing? Did you have your colonoscopy yet and, if so, how did that go? Hope you have been doing better.

FPO mrcleanks
Joined Jul 8, 2008

Tue, July 08, 2008 11:35 AM

 Reply posted for Jackie1980.

I just had ileococic resection and my appendix taken out 10 weeks ago. I returned to work 2 weeks ago and have been having spasms also. I didn't know if I did too much-my job is pretty physical-even though I have been trying to not do a lot of bending or heavy lifting. I have had spasms that make my entire midsection feel like I am being squeezed like crazy and the pain meds only take the edge off. I've been feeling like I did right after surgery. Is this normal after surgery? The surgery has helped with some of my eating issues and I've managed to gain back a few pounds but the gas, diarrhea, NO appetite haven't changed. Are the spasms "here to stay"?

FPO mrcleanks
Joined Jul 8, 2008

Wed, July 02, 2008 12:00 AM

 Reply posted for Jackie1980.

Hi there,

I have had four surgeries since 2001 involving three different sections of my small and large bowel.  I had never had spasms before my first surgery, but I do have them now.  After many years, what my GI and I have come up with is a combination of things.  One is that because of the disease and surgeries, there are kinks and probably some small strictures still in there and occasionally food gets temporarily stuck, causing these episodes.  The second is the timing...they always seem to happen around my period so I am thinking htat hormones/IBS are also involved, but I am trying to get pregnant so I deal with them as they come.

Often times mine get so bad I vomit and sometimes to the point where I just need to go to the ER, get fluids, anti nauea meds and pain relief, but usually I vomit once, get some pain meds down and eventually they resolve on their own.  Not a pleasant couple of days mind you, but I've learned to live with it.  I get them about four times a year.

Hopefully your scope goes well.  I have gotten to the point where my GI usually does a CT scan and if it looks OK, we chalk it up to a glitch and continue on.

Don't get discouraged, but listen to your body and if it gets too bad, call your GI or go to the ER.  I know they're frustrating as heck and I sympathize!  I wish I could tell you how to stop them, but in my case, it just is and you do the best you can.

Good luck!

FPO stamperzann
Joined Jul 2, 2008

Sun, June 29, 2008 12:00 AM

 Reply posted for Cash75.

thanks for responding! it is not that my knees shake, it is that the spasms are so hard and strong that the pain knocks me down to my knees...  have you had that? i will be fine and then my gut spasms so tighly that i cAnt breathe and i literally am on my knees because i do not know where to go with the pain

FPO jackie1980
Joined Jun 27, 2008

Sat, June 28, 2008 10:55 PM

 Reply posted for Jackie1980.

I haven't experienced the knee knocking.  The steriods that I've been on have made me shaky, but that has been more my hands shaking, not my legs or knees.  Sorry I can't help more! 

FPO cash75
Joined Jun 20, 2008

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