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Temporary Stoma/Ostomy After J-Pouch

Wed, March 18, 2020 9:40 PM

Has anyone had to have a temporary stoma after having problems with their j-pouch? I’ve had my j-pouch for 4 years and about 2 years ago I started experiencing ongoing mild to moderate lower, right side abdominal pain with episodes of severe pain in the same spot once every few months. I’ve been told the cause may be constipation and/or adhesions causing partial obstructions and/or IBS. My doctor is now suggesting that I consider a temporary stoma. I’m wondering if anyone has been through this and what the experience was like. My temporary loop ileostomy between my first and third surgeries was awful. It leaked constantly and I had to change my bag every 1-2 days. I’m worried it would be like that all over again. Also, I’m wondering if after the temporary period was over if I would just go back to dealing with the same original issue I’m dealing with now. Thoughts?

sj885
Joined Apr 7, 2021

Thu, March 19, 2020 1:43 PM

Reply posted for sj885.

We are sorry to read about the challenges you are having with your health and getting treatment help.
If you have not already done so, it may be helpful to get a consultation with a gastroenterologist who is part of a larger IBD Center. IBD centers often have a variety of IBD experts, surgeons and other specialist.

To find health care providers visit the Foundation website at: https://site.crohnscolitisfoundation.org/living-with-crohns-colitis/find-a-doctor/. Be sure to ask if the doctor takes your insurance and has a subspecialty or additional training in Inflammatory Bowel Disease.

administrator
Joined Oct 12, 2017

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