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Post surgery: Humira/Remicade or no drugs at all

Tue, February 24, 2009 1:00 AM

I just had surgery (an iliorection) and my Dr. is encouraging me to stay on Humira to prevent reoccurance of the disease. My husband and I want to get pregnant, and I had wanted to be drug free going into pregnancy. I am just feaful of being on a drug that has not been tested in pregnancy (and won't be because it is class D).

Also, I am allergic to Remicade, but they are very similar drugs, so if you have experience with that, I would be curious.

carl0938
Joined Sep 23, 2008

Mon, April 20, 2009 7:07 PM

Reply posted for mommyof1.

As for the pregnancy, I think only pentasa and prednisone are safe. I took myself off of everything and ended up living at the hospital for 3 1/2 weeks prior my babies being born. I was fed through a pic line. I thought I was in remission at the time. Watch your body when you get pregnant. I was getting fevers every week or two and nobody knew why. I think now it was Crohns related. I never had belly aches, but I had no appetite whatsoever. If I had only known earlier my Crohns was acting up I would have done different things (like take meds, see a nutritionist, etc.). But I also was pregnant with more than one.

Good luck.

gatorfun
Joined Feb 11, 2009

Thu, March 19, 2009 1:18 PM

Reply posted for carl0938.

When I was on Humira I was going to one of the best hospitals in the nation for bowel disorders ( I still go there, but off the Humira). My doctor told me that it was a safe drug that could be continued indefinately and that I could have children no problem while on it. I completely trust her about this.

I wouldn't go on prednisone if you can avoid it. There are too many complications and risks to you while on that drug. Humira, in my opinion, is the lesser of the evils.

I wish you all the luck!! Take Care...Susan

rodshunny
Joined Mar 17, 2009

Thu, March 19, 2009 12:00 AM

Reply posted for carl0938.

in response to trying to get pregnant. last year i had a perfectly healthy baby girl. i was taken off of all my medications, and put on 60 mg of prednisone. i still experienced symptoms...but the pregnancy actually made the symptoms more tolerable. the dr explained as my body was putting its focus in a different area. my baby was premature(7weeks), but due to the high dosage of prednisone she was born with all organs fully developed. none of the drs thought that i would even make it to week 30, or have the baby at all....said my body couldnt handle it. it was very risky, but things worked out in my favor. i was very lucky.

mommyof1
Joined Mar 19, 2009

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