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How many surgeries have you had???

Sat, May 16, 2009 9:04 PM

I have had CD for 15 years now. I have had 3 surgeries which resulted in a total of 28" of terminal ileum and colon to be resected. My last sugery was 12/31/08 - only 3.5 yrs since my last surgery. How has your condition and experiences been? Thanks.

scoobyrollz
Joined Feb 8, 2009

Fri, July 10, 2009 12:00 AM

Reply posted for paver.

Good Luck at CCF - I don't go anywhere else. It is one of the top two hospitals in the nation for GI treatments.

scoobyrollz
Joined Feb 8, 2009

Fri, July 10, 2009 12:00 AM

Reply posted for scoobyrollz.

six surgeries over 42years.90% of these were not to bad but this last one is been pretty bad to recover.today has been a good day,i just got another pint of blood.going to cleveland clinic for test and treatment.

paver
Joined Jun 18, 2009

Mon, July 06, 2009 12:00 AM

Reply posted for scoobyrollz.

I was finally after years of problems diagnosed with severe diverticulitis in 07 and had my resection in June 07 and they removed 18 inches, 5 days later I had to go back in due to a bad connection/leaking and they put a colostomy, then in Nov 07 they reversed the colostomy and removed 4 more inches of interstine and this time it took. I had some relief while I had the colostomy. Once it was reversed I started with pain again. I was diagnosed in 08 and hospitalized with UC. A month later I had to have another surgery due to cysts on ovaries which were caused by the previous multiple surgeries. I now have chronic pain, swelling, fatigue and so on. I was diagnosed this year after one of many colonoscopies with Crohn's. I am now taking Lialda, probiotic, metamucil, miralax and so on....I have tons of scar tissue, 2 hernias and they believe some nerve entrapment. Needless to say, I know the surgery saved my life, but I still have so many problems and more than I had before.

georgiana7
Joined Jul 6, 2009

Thu, June 18, 2009 7:27 PM

Reply posted for scoobyrollz.

i have had six resections ,last one in oct 2008.i have had this since 1967.just started humira six weeks ago and i am hoping for the new meds to kick in.some day are better than others.being 56 years old i am getting tired of this fight.sharing with others has been the best for me.getting involed with ccfa has been helpful .

paver
Joined Jun 18, 2009

Sat, June 13, 2009 7:02 PM

Reply posted for scoobyrollz.

I actually just had my 3rd surgery a little over a week ago (June 3rd). I have Crohn's and am realizing this isn't a wonderful option...but my only option. I know they took 14 inches this last one and I believe about a foot with each of the previous surgerys. I am seeking out more knowledge now than ever before. I am too young to have had so many surgerys and am scared to death I won't go into remission. I think sometimes I feel like I should be able to have more control over this than I do. I am just recently starting to make some major diet changes. I just ordered "Ending the Vicious Cycle" and have already been trying no gluten or dairy. At this point I don't see what it could hurt. I'm on all the medicines as well including Asacol, 6mp, Humira, B12 shots, and am tapering off of prednisone. I also just quit drinking diet coke which has been really hard but I know the caffiene and carbonation wern't good for me.

~Christa

clrbyers4
Joined Jun 13, 2009

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