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J Pouch surgery - one stage or two stage

Wed, December 02, 2009 3:09 PM

Anyone have any experience with or knowledge of the risks and benefits of one stage vs. two stage J pouch surgery? I have had UC for 30 years and have precancerous changes and will be having a full colectomy.

yankinuk
Joined Dec 2, 2009

Fri, February 05, 2010 1:00 AM

Reply posted for Ang300.

thanks for your helpful info. My surgeon and I decided on 2 stage for the reasons you mentioned. I had a few complications with sleepy bowel and then too much fluid output, but now home and slowly recovering.

yankinuk
Joined Dec 2, 2009

Thu, February 04, 2010 11:10 PM

Reply posted for yankinuk.

All information I have gathered from numerous sources show that a single surgery has a higher risk of complications than a two-part surgery.

I had the two-part surgery and am glad I chose that option.

This entire surgical procedure is very, very difficult on your body and you will want the best possible outcome in the long run.

Don't be in a hurry to get it over with as soon as possible. Keep your focus on the long run - take the time to put yourself in the best possible situation for a positive outcome. Have two surgeries.

ang300
Joined Oct 20, 2009

Fri, January 22, 2010 1:00 AM

Reply posted for yankinuk.

It depends on your surgeon and how healthy you are going into surgery. From what I understand, the one step has a bit higher risk of complications. The two step allows everything to heal before the pouch is connected. I had the two step, and although I was originally hoping for the one step, I'm very I had the two step. Not only was it nice to not have to poop after four years of severe UC, but if I were to have problems with my pouch in the future, I know what it's like living with an ostomy, and it's really not that bad.

Also, if you do decide to have surgery and you find a surgeon that will do it in one step, you should know that there is a chance that you could wake up with an ostomy.

jared fantastic
Joined Jan 21, 2010

Sun, December 06, 2009 11:44 PM

Reply posted for bean.

I decided to have a full colectomy because 4 doctors recommended it, 2 in the US, 2 in the UK. Personally I would only have surgery if recommended by my GI doctor, and think it is also useful to get a second or third opinion when contemplating surgery.

yankinuk
Joined Dec 2, 2009

Sun, December 06, 2009 4:41 PM

Reply posted for yankinuk.

Thank you for your reply. I recently had a colonoscopy and it showed low grade dysplasia, not high grade. I would like to avoid surgery, but am afraid it will progress. Good luck to you with the surgery.

bean
Joined Dec 5, 2009

Sat, December 05, 2009 1:00 AM

Reply posted for bean.

I have had four doctors recommend surgery, a GI and colorectal surgeon in the UK, and two GI Dr.s who treated me in the past in the US. I have low and high grade dysplasia. The high grade dysplasia is in the colon wall, and that is the indication for surgery. In the past and most recently I have had adenomatous polyps removed with low grade dysplasia, and no surgery recommendation, just annual colonoscopies to screen for cancer and pre-cancerous changes.

yankinuk
Joined Dec 2, 2009

Sat, December 05, 2009 1:00 AM

Reply posted for yankinuk.

Did you decide to have the j-pouch surgery because of the pre-cancerous changes or did your doctor recommend it? I have pre-cancerous changes, and am not sure if I should go ahead with the surgery or not?

bean
Joined Dec 5, 2009

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J Pouch surgery - one stage or two stage

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