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Need advice please ....new ostomy

Sun, December 27, 2009 10:09 PM

My friends 18 year old daughter had her colon removed the week of Thanksgiving. She had some rectal bleeding a couple weeks ago and was given steroid suppositories to use for it. She has been having a hard time keeping her bag on and now her stoma is red, inflammed, weeping, and blistered and her bags just slide off. She also now has a rash going up to her chest. Her mom says it looks like the worst diaper rash ever. any suggestions??? I was hoping that this surgery would help her regain her life back and being a UC patient myself her post surgery issues are scaring me. Mostly I want to help her. I suggested something for yeast? Which is my guess with the damp area and the steroids. I would think if it was an allergy to the ostomy equipment she would have had problems before now. Thanks for any advice.

redvicki
Joined Oct 5, 2009

Sat, January 02, 2010 2:37 PM

Reply posted for redvicki.

When I had my ostomy, I found I needed to try a few different types of bags before I found the right one -- different companies and different types. I also found I needed to change my bag every other day. Some folks said they could go 5 days but my skin couldn't handle it.

I also gave my skin a break by showering with my bag off. I took it off before I got in, took an extra long shower to give my skin and stoma some time to breath, the put on the new bag afterward (though it's was sometimes a tricky process if my stoma was active.

Not sure about the rash treatment as that didn't happen to me. Good luck.

jlohmeyer
Joined Dec 18, 2009

Tue, December 29, 2009 5:26 PM

Reply posted for redvicki.

Hello- There is a great forum on www.uoaa.org....the ostomy website that deals with skin issues. Does she have a ostomy nurse to connect with? Sometimes it can be a yeast issue and need nystatin prescribed. I hope she can connect with the dr/nurse to let someone look at it.
Good Luck....we've all been there and it does get better. :)

kc
Joined Jun 23, 2009

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