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j pouch surgery


Mon, December 28, 2009 9:30 PM

I just had an emergency surgery to remove my large intestine. I was diagnosed w/ U.C. in 2007 and biopsies taken during the surgery have indicated that I actually have Crohn's and not U.C. I am interested in hearing if anyone w/ Crohn's has had the J pouch surgery and the experience you have had w/ it. I know my surgeon here will not do the J pouch surgery w/ a Crohn's patient as it has been unsuccessful. I would be interested in hearing positive and negative feedback on this. All advise is welcome as it is more knowledge. This is truly a learning experience. Thanks.

FPO mincon
Joined Oct 6, 2009

Tue, January 05, 2010 1:00 AM

 Reply posted for mincon.

Hi there.  My name is John and I work closely with IBD patients (especially ones with J Pouch surgery).  I am a support group facillitator in the state of CT., member of the CCFA board of directors (for CT) and a national task force memeber.  I am also a Crohn's patient who had J Pouch surgery.  I know I can help.  PLease feel free to contact me via email at john.nesco@gmail.com.  Thanks.

FPO opusone
Joined Dec 18, 2009

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