Denied Surgery
Thu, May 06, 2010 11:24 AM
Has any had the Dr tell them surgery was not an option for there Crohn's? Thats what I am getting now after I was told it was an option. Dr. tells me you can not have surgery because of were your Crohn's is located its in my terminal Ilieum. But before they put me on the last medication to try she said it would be so I guess I am confused and was wondering if any one else has been denied surgery.
Joined Jul 23, 2009
Sat, May 22, 2010 12:00 AM
Reply posted for msalanui.
Hi,
You definitely will want to get more information from your doctor, or maybe even a second opinion from another Gastroenterologist. I have Crohn's, and the diseased part of my small intestine was in my terminal ileum. I had severe stricturing (narrowing) that was mostly scarring, so would not go away with medication. I had a couple of very painful small bowel obstructions, which fortunately cleared on their own. However, my symptoms got worse and I knew I was a bowel obstruction (or perforation) waiting to happen.
Last July, I had a small bowel resection where a portion of my terminal ileum (and my IC valve) were removed. I feel so much better now! I am currently on Humira in hopes that it will help keep me in remission for as long as possible.
Good luck to you, and keep us posted!!
marie 053Joined Aug 6, 2008
Sat, May 22, 2010 7:33 PM
Denied Surgery
My
20-year old (at the time) stepson was diagnosed with Ulcerative Colitis in
2007. After months of different medical treatments, and little if any
relief, in August 2008, he was admitted to the hospital with what the doctors
described as being among the top 5% of worst cases they had ever seen.
After 3 weeks in the hospital, and on the brink of death, the only two
options he was given by the doctors were Remicade or proctocolectomy (removal
of the colon and rectum).
After being told repeatedly by doctors that
diet has no effect whatsoever on UC (a part of the digestive system,
nonetheless), my husband refused to accept that claim and finally found a way
to get his son healed without medication or surgery. This regimen has healed
thousands of Colitis and Crohn’s patients all over the world for 20 years!
We spent the next 2 weeks weaning my
step-son off of the medications and drips (he had to hide his medications at
times because the doctors refused to work with him in this regimen). He followed
the proposed regimen of this system and at the end of those two weeks, he was
finally released from his 5-week stay in the hospital when his visits to the
bathroom went from 20 per day to 2 per day!!!!
One week later, and on zero medications,
the results of his next rectal scope showed that his colon had completely
healed other than one polyp which showed a brand new surface coming up behind
it.
Unfortunately,
my stepson has since come away from the diet because he does not like fruit and
vegetables. He has
thus, unfortunately, had a number of hospital visits since, numerous temporary
relief medications and is presently awaiting the start of the Remicade regimen
in spite of the horrendous side effects.
I wanted to
share this for those of you who are willing to make a wholesome change in your
lives in order to receive unfathomable rewards.
Joined May 20, 2010
Thu, May 13, 2010 2:24 PM
Reply posted for msalanui.
During my first flare, it was easy for me to imagine that my life would be easier if they just removed the diseased part of my intestines. I was denied surgery as well, because my doctor wanted me to try Remicade.
As it turned out, Remicade actually put the Crohn's in remission and my intestines were able to heal.
Now, I am facing the possibility of surgery. What I have learned is doctors do not want to jump into surgery because other options may actually be less invasive and have better results. Most people who have a surgery need another within 5 years. It's a scary thing.
Good luck to you, and hang in there.
Joined Jul 3, 2008
Tue, May 11, 2010 12:00 AM
Reply posted for msalanui.
Yes and no. My doc did not want me to have surgery. He wanted Humira. I was so strictured that surgery was the only option. Ask the doc to explain it to you. Or do what I did and talk to another doctor about it.
Joined Jan 5, 2009
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