Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

surgery 8 times


Tue, January 11, 2011 6:33 PM

i have had 8 surgerys  since dianosis in 2001. no one around me can comprene the pain and misery i face every day.Just in november of 2009 i was a 9 in a half out of 10 on the worst off. Iwent in for another illestomy, while in operation, i had mutiple system faliure. kidneys had shut down, gallbladder swelled to thr size of a pineapple. after fixing that my blood pressure plumpleted. they gave me meds. to bring it up and rush the blood to my organs. i now have a very bad foot. almost lost it! it basically was like frostbite had to be skinned graphed. now cant walk right. was not walking at all for 6 months. i now am taking remicade have had 3 infusions so far. so far so good. gives me terrible headaches 

if that is all i have to deal with to get my crohns into remission, so be it. 
i live in salisbury maryland but there are no support groups in my area. i am thinking about starting one myself. is there anyone out there who lives in my area?












































































FPO jessi320
Joined Jan 11, 2011

Related Topics

Small bowel resection
Author Image jess123
Joined Jan 9, 2022

Hi, I'm preparing to have an ileocecal resecti....

read more

Issues after complete sur...
Author Image Rolo
Joined Feb 25, 2024

Hello, I have had all 3 surgeries to complete m....

read more

Ostomy Support
Author Image JohnWalsh
Joined Dec 11, 2023

Are there wound care experts or professionals that....

read more