Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Previous Topic Next Topic

Looking for others who have an S pouch

Thu, January 13, 2011 1:52 PM

I had a total colectomy in 1982 and received an experimental S pouch. Looking for others who may still have them to see how they are fairing after all these years. I hear there are not many of us still around.

tuxedobird
Joined Jan 4, 2011

Thu, January 27, 2011 10:42 AM

Reply posted for Wolverinefan.

Hello Wolverinefan! When I got my S pouch in 1982, it was an experimental surgery and the J pouch did not exist. The options I was given were an illeostomy, a koch pouch, or this experimental surgery. I was actually the 115th person to receive it. I'd be happy to discuss details with you if you want to contact via facebook or email. No reason to refer to yourself as "selfish"....what you find out may help someone else down the line

tuxedobird
Joined Jan 4, 2011

Wed, January 26, 2011 10:24 AM

Reply posted for tuxedobird.

Hello! I know this may sound super selfish so I must clarify ahead of time that I certainly DON'T mean it that way. I had a total abdominal colectomy in '95 with a J pouch. I'm just curious how you've faired with an S pouch? Not only am I a patient but I am a nurse, currently unemployed since last year due to some recent troubles with obstructions, but I totally forgot about the S pouch as an option. Obviously, it's called that due to it's shape, correct? Do you know if in the 80's when you had your surgery done if they only did S pouches then or was there a J pouch but they went by "certain criteria?" When I mentioned previously I didn't want to come across sounding selfish it's because I am interested in learning all there is about the different surgeries out there and why some of us had different ones done. I just don't have much to offer in return, well nothing in return when it comes to the S pouch. Now if you asked me about the J, I could help you out there as I've lived with mine for going on 16 yrs. now. My youngest daughter, she just turned 9, has been dx with IBS, scary & sad! I have been a part of CCFA since it's inception for their education and have loved watching them continue to grow & serve our population. I've also appreciated the recent webinars/conference calls to learn more about new topics they're constantly doing research on. Now I am glad not only for myself that I've stayed educated, but also now with my little one seeming to have my similar DNA! :( Have a blessed day.

wolverinefan
Joined Jan 26, 2011

Related Topics

Small bowel resection

jess123
Joined Jan 9, 2022

Hi, I'm preparing to have an ileocecal resecti....

read more

Issues after complete sur...

Rolo
Joined Feb 25, 2024

Hello, I have had all 3 surgeries to complete m....

read more

Ostomy Support

JohnWalsh
Joined Dec 11, 2023

Are there wound care experts or professionals that....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.