Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Previous Topic Next Topic

J pouch for flat dysplasia

Wed, January 26, 2011 11:34 AM

Hi there, I'm a 43 year old woman who was diagnosed with UC in 1978 at the age of 12. I have had some very bad and some awesome years dealing with the UC. The past five years have been almost symptom free (no blood nor urgency) since I realized when I ovulated I flared and started taking birth control pills. This year I switched Dr's and this was the first dr to ever discuss with me taking samples every 10 cm during the colonsocopy. Needless to say, he then told me I have flat dysplasia and need J-pouch surgery. I freaked out. This week I drove from here in "po-dunk" to a major city hospital and met with another dr. He stated he did not trust the report from "po-dunk" b/c they wrote I had "mild" dysplasia and it should have been either low-grade or high-grade. I just sent my photos and slides from the procedure off to their pathology department for a 2nd opinion. So here's my question, is there anyone out there who has had the J pouch surgery while feeling pretty healthy for flat dysplasia? I'm sure there is, I just haven't found anyone on the boards and would love to hear some other stories of what to ask, what to look for, etc. I look forward to hearing from you.

mrsmat
Joined Nov 15, 2010

Tue, February 08, 2011 11:07 PM

Reply posted for craiglll.

thanks. I'm growing frustrated. I got the run around from the hospital where I had the colonsoscopy (which really stinks b/c I am an employee too) and finally got the slides to overnight down to the big city doc. Now I can't seem to reach a human there (2 weeks of phone calls, wrong human, and voicemail hell) who can confirm they have truly arrived to the correct place and the dr is working on them. Thanks for your feedback, I know its a huge change and not something I am taking very lightly. My faith is keeping me from going nuts. I'm glad you found a good doc.

mrsmat
Joined Nov 15, 2010

Tue, February 08, 2011 5:23 PM

Reply posted for mrsmat.

I had J Pouch surgery but I had UC throghout my entire large intestine. I was diagnosed but an excellent doctor in a small town. Then i went to live in St. Louis wherre I had my surgery. I woudl be very careful. It is a true change in your life.

craiglll
Joined Feb 8, 2011

Related Topics

Small bowel resection

jess123
Joined Jan 9, 2022

Hi, I'm preparing to have an ileocecal resecti....

read more

Issues after complete sur...

Rolo
Joined Feb 25, 2024

Hello, I have had all 3 surgeries to complete m....

read more

Ostomy Support

JohnWalsh
Joined Dec 11, 2023

Are there wound care experts or professionals that....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.