Please somebody I feel so alone with this diease. This will be my second surgery and when my surgeon sat with me to consult I did not realize all of the possible complications that could happen with this second surgery. I was obstructed with my 1st so it was emergency surgery so there was no time to sit and consult.
I have had crohns diease for 12 yrs . I would appreciate so much if I had some one to tell me I can make it.
Mrs10ring@aol.com blondiehurts
Reply posted for blondiehurts.
I know exactly how you feel and you are definitely not alone. We all have our ups and downs. I think that in any time you are going to have surgery. You are more susceptible to complications. On October 29, I had my entire colon removed and I experienced complications. I developed abscess on my bottom (anus/rectum) they did not drain cause I responded to antibiotics and they rather not poke around where surgery was done. I also developed a urinary tract infection which also responded to the antibiotics. My hospital stay was supposed to be 3-5 days after surgery and I ended up hospitalized for almost two weeks. Yeah, definitely be prepared for complications, these things just happen. I am sure you are in great hands and I wish you the best of luck. Also, remember that your recovery depends on your state of mind. Just think positive and you will be fine!!!
I was diagnosed with Crohns in 2010 and had my first resection in Feb 2011. I was 33 years old. Now, less than two years later, I have my second surgery scheduled for Dec, only a few more weeks from now.
I'm scared, too, and sad. I hate how soon this has happened and wonder how often I'll need future surgeries and if they will be even more frequent.
what has helped me is remembering how great I felt after I had recovered from the surgery. I could eat again, travel, I had energy....
Also, I've been a better advocate for myself. I had a consult with the surgeon who did my first operation and I didn't feel comfortable. I spoke to my GI doctor and got another surgeon recommendation. I feel much better about this doctor. He will also have a gynecologist in the operating room with him because my abscesses (4 to date) always present around my ovary. Very scary to know that I might lose an ovary, especially since I haven't had kids yet. Maybe kids won't be in the cards for me now, but my health is more important. Trusting my surgeon is more important.
Best of luck to you. I hope you get some comfort in knowing you're not alone.
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