Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

unsure

Tue, May 27, 2008 12:00 AM

i'm 22 and i was diagnosed with crohn's in 2004. my mom and cousin have u.c., my aunt has i.b.d., and my grandma has rhuematoid. i've been on entocort, remicaid, imuran (all 3 of which i had reactions to), pentasa, asacol, prednisone, probiotics, anitbiotics, most recently humira, and i've had to have iron infusions: i've yet to be in remission in these 4 years. i hit the hospital at least one a year because of my crohn's or issues stemming from flares and having a low immune system; i catch whatever cold is in a mile of me. i'm lucky if i make it to work 5 days a week, and when i'm sick the bills just keep piling up, which makes the stress higher. i'm really just getting sick of being sick all the time. not to mention that sometime down the line i want to have kids and with being this sick it's so not gonna happen. i'm thinking about surgery, but my husband and i are both nervous about it. does anyone have any info we could read and maybe bring to my next g.i. visit? thanks

jezjiah13
Joined Sep 25, 2008

Mon, June 23, 2008 12:00 AM

Reply posted for Jezjiah13.

Hi Jezjiah...I'm a 25+ yr. Crohn's sufferer & have been through quite alot, including hosts of drugs & surgeries. Due to a diagnosis of an extremely rare eye cancer, I was forced to stop 6-MP & Remicade & undergo ileostomy surgery in '06. I strongly suggest that you visit the following forum to learn from others, the pro's & con's of ostomy surgery. This is a great forum for people w/ ostomies...very friendly & HONEST. The name of the forum is C3Life. I believe that I first learned of this forum through the United Ostomy Association of America. I strongly urge you to check it out before making a decision...fuzzy

P.S. While the majority of people, including myself, wish that they didn't have to deal with an ostomy, most feel that the freedom (especially for those w/ UC) outweighs their previous suffering. Hope to see you there!

fuzzy
Joined Jun 22, 2008

Related Topics

Small bowel resection

jess123
Joined Jan 9, 2022

Hi, I'm preparing to have an ileocecal resecti....

read more

Issues after complete sur...

Rolo
Joined Feb 25, 2024

Hello, I have had all 3 surgeries to complete m....

read more

Ostomy Support

JohnWalsh
Joined Dec 11, 2023

Are there wound care experts or professionals that....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.