My 11yrold daughter was diagnosed with UC in June 2013, and a week later she was diagnosed with type 1 diabetes. Docs believe that the diabetes is a result of the prednisone, which she is being tapered off currently. She's on asacol and prednisone. Her ped GI hasn't restricted her diet but has told her to log everything down to see how you feel. Whatever effects her tummy gets taken out of her diet. She has taken the diagnoses better than I have. I am concerned because all I read is how debilitating it can be and I wan to make sure that my daughter understand that. I am truly scared for her now. I just want help coping with my daughters diagnoses
Reply posted for dsoto19.
I know the feeling. My 13 year old daughter was diagnosed with Type 1 this year and then 3 months later Crohn's disease. It is completely overwhelming, and the two diseases can contradict each other and impact each other. The GI doc deals with the Crohn's, and the endo deals with the Type 1, and rarely do the 2 diseases meet. But I find they are closely connected and related.
The reality is that the combo of these diseases is rare, and there is little data to drive treatment for people with T1 living with Crohn's. My daughter and I created a facebook page called Living with both Type 1 diabetes and crohn's disease if you are on FB; we are really wanting to talk with other families going through the same thing. The diabetes community is wonderful in our area and the CCFA community is outstanding (the camps are amazing!), but with children who have both, there is a sense of belonging that is missing. I would be happy to find a way to be in touch. Best, Erin
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