When the person you love has Crohn's but doesn't follow guidelines
Fri, August 26, 2016 11:01 PM
I'm so frustrated with my partner. He has been in the hospital now twice in the last 5 months - the first time was for over 2 weeks - this last time was almost a week. He has been on all sorts if medications - steroids (these make him angry, short tempered, increased anxiety, sweaty, and just grumpy and bloated with zero sex drive) - non steroids like asacol, or other non invasive meds (he will decide to take less or more or whatever and not follow the bottle script) - remicaide - IV infusions (he has had 2 of these and he gets a little bounce back, then over extends himself and feels like crap. I try to cook all the foods at home. Eggs for breakfast, soups for lunch, gluten/paleo/dairy free. Almonds, soy, butter lettuce, papaya- all anti inflammatory type foods. I get frustrated with my partner because he binge eats. He will sneak food and sneak treats and not eat a diet that's healthy. Then he gets super sick and for example will be out of work for 3 weeks. It puts a lot of stress on me; our family. We have two boys who are super active and hyper and have some learning adjustments and school accommodations for their own diagnosis issues. It puts unbelievable stress and pressure on me. I feel like a strict tyrant and then get resentful when I see evidence of milk shakes and smoothies and cookies and a whole half gallon of ice cream having been eaten in one day. Especially when I work so hard to cook and prepare healthy meals. He doesn't want surgery for his strictures, he doesn't want to do meds because he if he did he would stick to the doses on the bottles. I'm so tired. I have Ulcerative Colitis and the stress and lack of appreciation for all I do for him makes me angry. He minimizes when I'm not well an when I'm bleeding from my backend but I don't minimize his issues. I'm a therapist and suggested he get counseling for his anger and barriers and self sabotage. I love him. I love him when he is healthy I survive him during flair ups.
Joined Aug 26, 2016
Thu, September 08, 2016 9:02 AM
I'm so sorry to hear of this stressful situation. It sounds as if he's abusive during his flares, so I hope that you are taking extra precautions for self care during those times. I have similar frustrations with my husband who has refused to try any dietary measures whatsoever. He is convinced that he will be miserable no matter what so he might as well eat what he wants as "bad" food gives him at least momentary joy. This morning his pain was excruciating and he considered going to the hospital. He finally said he would try one of the nutritional avenues sometimes recommended for Crohn's (Paleo, GF, etc.) because he can't continue to live like this. I just hope he really does follow through and sees some benefit.
grevivedJoined Sep 8, 2016
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