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In remission but still in pain?


Wed, September 20, 2017 11:00 AM

My son Gabe age 12 was diagnosed with Crohns Disease a year ago. Gabe had stress Monday afternoon. He was down with stomach pain Monday night till this morning, 1.5 days later. He missed school yesterday. He didn't have other symptoms, such as that would indicate an obstruction etc. I am trying to understand the cause of his pain since he is in remission thanks to Remicade. Last scopes and all labs look clean. No detected strictures, fistulae, ulcers, etc. He is on 30 mg of amiltryptaline for IBS. Since he experiences untraceable pain his doctor diagnosed IBS explaining that it may be ghost pain, his nerves are used to pain and feel it easily even when there is no physical source. Gabe goes to therapy weekly for stress and coping. I am very attentive to his emotional needs however I finally encouraged him to tell his mind and body to believe they are OK now. Can someone please help me understand the pain?

FPO GabesMom
Joined Sep 20, 2017

Tue, February 06, 2018 3:44 PM

Reply posted for GabesMom.

 
 Hi GabesMom,
There was a similar question posted in the community expert section
https://www.ccfacommunity.org/crohns-colitis-expert-qa
Q. I am 22 years old and have had Crohn's and ulcerative colitis since I was 5 years old. I just got over a bad flare up and a recent scope shows inflammation is almost gone. However, I have constant pain in the right side of lower abdomen that will not go away. The pain is interfering with daily activities. I have been in and out of the hospital and seen my doctor numerous times and no one seems to figure out how to decrease this pain. Any tips of how to deal with the pain?
 
A. This is a common scenario and I am glad that you brought it up. We know that there is a group of patients with Crohn’s or ulcerative colitis who have ongoing pain without evidence of active intestinal inflammation. The pain can be due to multiple causes including small bowel bacterial overgrowth, musculoskeletal pain, irritable bowel syndrome, etc. It’s important to work with your gastroenterologist to determine the cause of the pain so it can be adequately managed.
 
 

FPO administrator
Joined Oct 12, 2017

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