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10 Year Old Son with Crohns


Wed, August 22, 2018 3:07 PM

Hi my name is Amber. I have a ten year old son who has Crohn's disease. He was diagnosed in July of 2016. Remicade has really helped him, as l9ng as he gets a dose every five weeks. His Crohn's is fairly severe. Started in the back of his mouth, went throughout most of his digestive system. A lot of the ulcers are healed right now, he had a colonoscopy yesterday and he looks so much better. But I am terrified it's going to quit working and he is going to end up back in the hospital being line fed. Due to another hospital previously diagnosing him with the "stomach flu" And "faking pain to get a rise out of you" He ate little or nothing for months and threw up what little he did. I took him to another hospital after three months but by then his organs we're starting to fail. So he had a few rough months recovering. I just fear it happening all over again. So I have a question. Has anyone else had long term use of Remicade without any flares? Could my son possibly go years without any issues?

FPO AJSwanson
Joined Aug 22, 2018

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