As I write this I sit bedside to my 17yo son in the hospital for the third time in three months with fistulizing Crohn’s disease. The ups and downs of this journey have rocked our world and I’m looking for some support. Does any one have a great suggestion of how to create our own support group? My frustration lies in the fact that I have not readily been able to find one in our area (Sacramento, CA), and both my son and I would benefit from talking to those going through the same thing ( or who’ve made it through the fire). Please,please if this post resonates with you and/or if you are in the Sacramento area and are a patient ( around my sons age) or a parent that could offer advise or would be interested in getting together let me know!
Reply posted for Kruelas.
Kruelas,
We are sorry to read about the challenges your son is having with his health.
The closest support group is in Roseville CA.
http://www.crohnscolitisfoundation.org/chapters/northerncalifornia/support-programs/ccfa-support-group-roseville-ca.html
Northern California Chapter
415-356-2232
We also have another program called Power of 2
Interested in peer-to-peer support? Not finding a support group in your area? Power of 2 is a peer-to-peer support program for individuals seeking to talk by phone to other patients or caregivers with IBD. Please note that this is not an emergency service and matches are typically made within one week. If you need more immediate assistance with your questions, please call our IBD Help Center at 888-MY-GUT-PAIN (888-694-8872, extension 8), or email info@crohnscolitisfoundation.org. If you are interested in signing up for the Power of 2 program, please e-mail powerof2@crohnscolitisfoundation.org or call 888-694-8872 x 8 to learn more. We have young adults who can speak with your son. We also have parents and caregiver volunteers.
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