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6mp - anyone with side effects?

Fri, September 18, 2009 12:00 AM

My son was diagnosed in 2006 at age 7. He does not suffer from the "bathroom" issues but has not been able to sustain any weight gain since his diagnosis. He has suffered from side effects of nearly everything we have tried (asacol, colazal, and cipro were the worst side effects). Doc now wants to put him on 6mp and I am terrified because of the side effects of this medication. He is very pale, weak, thin, and now has bleeding when he goes to the bathroom (although no diarreah). Anyone out there with a similiar situation?????? Has anyone had a child suffer side effects from 6mp???? It has been 3 years and I am desperate to help him get healthy, I appreciate any info. Thanks

johnsmom
Joined Sep 18, 2009

Wed, October 14, 2009 4:09 PM

Reply posted for johnsmom.

I have been on 6mp for almost 6 years now with no side effects. It has been wonderful and able to keep me in remission for a year or more at a time. I encourage you to try the medication and of course stop if symptoms occur. It has been my miracle drug. I had tried everything available and ended up hospitialized with my UC prior to taking 6mp.

ucfor7
Joined Oct 14, 2009

Mon, October 05, 2009 12:00 AM

Reply posted for johnsmom.

Hi Sorry to hear about your son. My daughter is 12 and was diagnosed 2 years ago. She started taking the 6 mp about 6 months after her initial diagnosis. That drug turned her around completely. Her pentasa helped tremendously but we attribute her excellent health, weight gain, and growth to 6 mp. However, I agree with the woman who's child had terrible side effects to stop it immediately if his symptoms deterioate.

Best of Luck

gracesmom
Joined Oct 5, 2009

Mon, September 21, 2009 12:00 AM

Reply posted for johnsmom.

I'm so very sorry to hear about your son. Our daughter was diagnosed with Crohn's at age 5, she is getting ready to turn 7. She has been on Asacol, steroids and now remicade every six weeks. Nothing has helped much yet. Her Dr says that 6mp along with the remicade may put her in remission. The Dr's office says all of his young patients are on this combo with no problems. So I guess side affects are rare. We, unfortunately didn't have this. Faith took 6mp in June and was hospitalized with a serious infection. The Dr said it was from a virus or something, not the 6mp. She had a high fever, vomiting and diarrhea. He talked me into trying it again 3 weeks ago. The 2nd day she began feeling bad. Then vomiting and heavier diarrhea set in (always has diarrhea). Took 6 mp for a total of 5 days. Ended up loosing 10 lbs (she weighed 50 to start with) in 7 days. I stopped giving it to her, but not before she started bleeding again. She CANNOT TAKE 6MP and I promised her she would never have to take it again. Now she is on heavy doses of prednisone to calm the crohn's down. I get so frustrated, I'm not sure which is worse some days, the disease or the treatments. My advice to you would be try the 6-MP but if he has severe side affects like our girl stop it immediately.

Wendy

fewmccullough
Joined Jun 17, 2009

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