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Does anyone have child on sulfasalazine

Mon, March 08, 2010 2:59 PM

Pentasa isn't working for my 19 month old son because he isn't absorbing it. His doctor is suggesting that we try sulfasalazine compound mixed with syrup. Does anyone have a young child on sulfasalazine? Have you had success with it? Has your child experienced any side effects?

sarah2008
Joined Mar 27, 2008

Thu, April 08, 2010 6:46 PM

Reply posted for Sarah2008.

We've tried most of the 5ASA's and none of them seem to work for us. My is now 231/2 mths old. He was first diagonosed at the age of 16th mths. Since November he has been on Prednislone. He started out at 4ml a day now he is at 2.5 ml a day. There is also another flare up stirring. Oh!oh! B-Day party in a couple of days Hope we last. If it doesn't calm down,his GI Doc's are going to start him on Immuran. Let's see how that works! Nothing has worked as well at the Prednislone.

saddenmom14
Joined Nov 12, 2009

Fri, March 19, 2010 12:00 AM

Reply posted for Sarah2008.

Hello,

My son is 16 months with Crohn's disease and has been on sulfasalazine for the past 4 months. It has done wonders for us. He went from having bloody diarrhea 12+ times a day to none in only a few short weeks. We get it in a pill form and dissolve it in water for him. He takes from a syring 3 times a day with no problem at all. We don't have to flavor it or anything.

From what I understand about this medication it is one of the safer ones for little children to take. The side effects are typically much less severe. My son did seem to have some extra stomach pain and headaches at first, but they have since stopped. He still has pain, but I think that is something we will always be working on.

I would definately recommend discussing it with your doctor more before trying another type of treatment. It has really changed our life. We still struggle with some problems of the disease, but the difference is outstanding. I know how stressful and challenging it can be at times to see your young child going through so much. I wish you and your family the best of luck.

PS. I forgot to mention, my son's GI doctor prescribed a daily multivitamin with folic acid in it because sulfasalazine can interfere with the absorption. This can be hard to find in liquid form I discovered. It may be worth mentioning to the doctor :)

beth451
Joined Mar 19, 2010

Mon, March 08, 2010 8:26 PM

Reply posted for Sarah2008.

I had responded to one of your previous posts, my daughter has been on it for six yrs. I know that the day may come that it will no longer be enough/effective, but for now, it is doing its job. As for side effects, we haven't encountered any. The only thing we need to do is lather her up with sunblock SPF 75 (being it is a Sulfa based drug, the skin can react to sun exposure).

Lizzies Mom

lizzies mom
Joined Sep 9, 2009

Mon, March 08, 2010 3:45 PM

Reply posted for Sarah2008.

Hello,

My son was on Sulfasalazine (liquid form), he did fine on it for 2 years and then had to be switched to colazal 3x day. He is now on Imuran 1x day and colazal 3x day, we are also weaning him off Prednisone but he will be on it for another 11 weeks while we wait for the Imuran to kick in. My son was also diagnosed very young with UC (he was 2 yrs), he is now 5 years old and we really just started having problems over the last year. If you would like to talk you can call me anytime, sometimes it is easier to talk than email and reply to posts. My name is Sandy and my # is 586-915-5639, I am in Michigan.

jcraig007
Joined Feb 17, 2010

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