Hi-
I have seen you say that your daughter had a very tough time getting off Prednisone and that she is also on 6-MP now.
Can you tell me more about why she had such a hard time getting off Pred. and how long she was on 6-MP before she was fully off Pred?
My dd is on Pred and 6-mp so I am wondering more about that>
Thanks so much
Reply posted for AZMOM.
Victor was off Pred 4 April and started 6MP 24 Feb...it was great no problems...had labs bi-weekly and w/added iron his White and Red blood counts are on track. He had a bout of diarrhea Wed...Sat he ate Popcorn and Sunday bloody stools...so not sure if popcorn irritated or was just bad timing. We have decided no more popcorn scales for now. Sorry...what I wanted to say is the time between off Pred and 3mos needed for 6mp may be the cause of this flare if it is a flare...but no side effects or hair loss. He is on 25mg of 6mp and at that low dosage...chances for side effects are very low. Good Luck! Marcella
Reply posted for AZMOM.
okay after I wrote that novel, I realized I could have just told you it took almost 6 months
Reply posted for AZMOM.
this is actually part 2 - sorry!
Reply posted for mygirlrj.
Hi - Well they started IV steroids and 6MP during her hospitalization in June. She was still have bloody stools when we left the hospital but felt much better and was improving (like 2 or 3 a day vs. 15). She was on 40 mg a day. We started trying to wean 6 weeks later but whenever we would get to 30mg, the bleeding, joint pain, diarrhea etc, etc, etc started again and we went back to 35 mg. Checked the metabolite for the 6MP at about 12 weeks and found that the 6MP wasn't at therapeutic levels and we had to give it more time. Added Pentasa but then her liver enzymes shot through the roof so we had to drop the Pentasa. Finally, we started weaning steroids again at about 5 months on 40 and 35 mg) of prednisone a day. It took us a total of 6 weeks to completely wean her and when we did, she did fine.....no recurrence of symptoms. Once we were off the prednisone completely we got to drop the Prilosec, Iron and another supplement that is escaping me right now.
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