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Are the any children under the age of Five year's old w/Crohn's Colitis!


Sun, July 25, 2010 12:47 AM

I am trying to get parents together by age groups for more support,stories to compare.Maybe if we do it this way we can do a study ourselves to come up with a cure or at least a theory! I'm willing to try what ever it takes to stop this NIGHTMARE!

FPO saddenmom14
Joined Nov 12, 2009

Fri, January 01, 2016 9:07 PM

 Reply posted for saddenmom14.


Your post if very old - but I would love to talk to other parents of children who have chron's granulomatous colitis. My daughter is 7 - she has had this disease for a number of years. Azathioprine worked for several years. She is going to try etyvio now. 

FPO vivismom
Joined Jan 1, 2016

Sun, July 25, 2010 12:00 AM

 Reply posted for BamaBelle.

I'm curious what insurance issue would you have?

FPO saddenmom14
Joined Nov 12, 2009

Sun, July 25, 2010 12:00 AM

 Reply posted for alanschachter.

I'm curious what insurance issue would you have?

FPO saddenmom14
Joined Nov 12, 2009

Sun, July 25, 2010 12:00 AM

 Reply posted for alanschachter.

My son was born with Crohn's Colitis.  It was not diagnosed until  he was 16th mths old.

FPO saddenmom14
Joined Nov 12, 2009

Thu, July 22, 2010 10:29 PM

 Reply posted for saddenmom14.

Hi. I'm new to this community. This is actually my very first post. My daughter just turned 5 this summer, and has been diagnosed with "non-specific" colitis (the doc said ulcerative colitis diagnosis will cause insurance problems so he's not ready to give UC diagnosis just yet). 

FPO bamabelle
Joined Jul 22, 2010

Wed, June 09, 2010 12:00 AM

 Reply posted for saddenmom14.

I meant to say NOT feel ashamed!  My bad.

FPO stroxell
Joined Jun 9, 2010

Wed, June 09, 2010 12:00 AM

 Reply posted for saddenmom14.

My grandson is 4 yrs old and as of today has been diagnosed with Crohn's.  I would like to help my daughter-in-law cop with the news she received today -- and find ways to start applying right away to help make his life better from the start, and have him feel ashamed when he gets older.

FPO stroxell
Joined Jun 9, 2010

Sat, May 29, 2010 9:59 PM

 Reply posted for jcraig007.

Dear jcraig007...I have a 5-year0old son, myself, so I cannot imagine what you are going through, but I have come on this forum to share my testimony from my older step-son who is a colitis patient.  I have also just responded to a question from saddenmom14, so by now, she should be aware of this info as well...do have a read:

Char

My 20-year old (at the time) stepson was diagnosed with Ulcerative Colitis in 2007.  After months of different medical treatments, and little if any relief, in August 2008, he was admitted to the hospital with what the doctors described as being among the top 5% of worst cases they had ever seen.  After 3 weeks in the hospital, and on the brink of death, the only two options he was given by the doctors were Remicade or proctocolectomy (removal of the colon and rectum).

 After being told repeatedly by doctors that diet has no effect whatsoever on UC (a part of the digestive system, nonetheless), my husband refused to accept that claim and finally found a way to get his son healed without medication or surgery. This regimen has healed thousands of Colitis and Crohn’s patients all over the world for 20 years! 

The name of the book is "Self Healing Colitis & Crohn's"

When you do a Google search, look for the colitis-crohn's website....go there and read to your heart's relief!

We spent the next 2 weeks weaning my step-son off of the medications and drips (he had to hide his medications at times because the doctors refused to work with him in this regimen).  He followed the proposed regimen of this system and at the end of those two weeks, he was finally released from his 5-week stay in the hospital when his visits to the bathroom went from 20 per day to 2 per day!!!!

One week later, and on zero medications, the results of his next rectal scope showed that his colon had completely healed other than one polyp which showed a brand new surface coming up behind it.

FPO charbren
Joined May 20, 2010

Thu, May 27, 2010 12:00 AM

 Reply posted for saddenmom14.

Hello,


My son is 5 years old and was diagnosed at the age of 2 with UC.  My email address is jcraig007@comcast.net, I would love to be involved.

Sandy

FPO jcraig007
Joined Feb 17, 2010

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